Hi All
I'm new to this so please bear with me. I'm so so scared. I've had Crohn's for about
20 years. Started in my teens. Been on all the meds except the imunosuppressants like Remicade etc. because already have a pre cursor to a form of Lymphoma so I have to stay away from those meds. All the prednisone caused osteoporosis.Had adrenals issues and now well I don't know what's going on. Can't eat much and lost so much weight. Look terrible. Was on gluten free diet and eating healthy and taking supplements.
Been under alot of stress lately due to the passing of someone close to me. Started feeling really weak, having night sweats for about
two years that have been poo pooed.(no pun intended:)), abdominal discomfort, sour stomach, with burning under my rib cage, shortness of breath at times, insomnia,bloated abdomen,recently swollen gland behind my ear, sinuses were bothering me so given Tobramycin and prednisone liquids for inhalation through my nose. While taking it broke out with green pimples on my nose. The abdomen thing feels different. The GI put me on Neomycin even though SIBO test negative.Also gave me Prilosec which I'm hesitant to take because of side effects. Having yellow diarrhea which now alternates to pale.
Now had bloodwork done for something else and within two weeks my neutrophils and wbc went very low where there was an alert
. So both my GI and regular doctor that gives me supplements said I should see a hematologist/oncologist. I'm freaking out because I just lost a family member to cancer. Yikes! I'm a young adult and scared to death.
Oh I'm on Pentassa and supplements. B12 over the top because I get infusions of it besides Neomycin
Anyone have this or any words of wisdom. Have an appt this week with hematolgist/onc.
Thanks in advance and wishing you all the best
Chris
Post Edited (itsme17) : 10/8/2012 6:23:44 AM (GMT-6)