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Foul Taste, Hair Loss, Poor Nails, Aching All Over

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Crohn's Disease
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Posted 10/10/2012 4:41 PM (GMT 0)
just been diagnosed, but for weeks i have had not only a strange taste in my mouth, where most foods taste foul, but also the textures are all wrong. my hair has been falling out more than usual too and my nails are wrong and hurt anyone else had the same? how do you deal with the fact your body isn't hanging on to any nutrition?

[*Just gave this post a Subject title - C2]

Post Edited By Moderator (CrohnieToo) : 10/10/2012 11:48:39 AM (GMT-6)

Posted 10/10/2012 5:47 PM (GMT 0)
What meds are you taking?
Posted 10/10/2012 5:49 PM (GMT 0)
What meds are you taking? Some meds can cause one or more of these symptoms often just temporarily. Help us help you out by telling us what meds and doses you are taking.
Posted 10/11/2012 12:44 AM (GMT 0)
What do you mean your nails are wrong?
Posted 10/11/2012 11:30 AM (GMT 0)
I agree with the others that we need to know your meds to help more....

But I would also give you the initial advice of get on some Folic Acid supplements.  It seems the Crohns affects my hair and nails a lot also.  The folic acid has reduced the shedding and helps keep my nails less "bumpy" and less brittle.

As for the foul taste...my first suspicion would be som med (I know I took one that made the worst taste ever).  I also know I go through taste bud changes regularly after 22 years of this disease.  You might want to check your toothpaste--that was my recent issue.  Especially when I am in a flare up (but even when I am doing well), whitening toothpastes are too harsh for my mouth.  I switched to Crest ProHealth Sensitive and have less issues now.

Let us know some more and I hope you are feeling better today!

Posted 10/12/2012 10:05 AM (GMT 0)
I just want you to know that I am going through the same thing. First, the taste in my mouth, is so persistent. It is always there. I have never had it like this before with any other flares. I am taking Liaida, prednisone and then the natural stuff like fish oil, probiotics, l glutamine. Everything tastes so different. Not sure what the cause of this is but it doesnt sound like it's the meds.

As for the other stuff, I guess the truth is our bodies are just constantly fighting this disease. Maybe it's just so tired that it cant take care of the other stuff as well-hair, nails, skin, etc...

Praying you get some relief. Hang in there!
Posted 10/12/2012 4:19 PM (GMT 0)
It's a side effect of the drugs you are taking. Are you trying to figure out which one? You don't even have to really mention them if you don't want to. It definitely isn't caused by your Crohn's alone.
Posted 10/12/2012 8:46 PM (GMT 0)
I don't take any Crohns medicines. I have the same problems. My hair and nails got way better by taking a B-total and magnesium. Every day two B - total vit and one magnesium. Ask for advice re doses.
Posted 10/14/2012 6:32 PM (GMT 0)
My hair has been falling out like crazy. I have a ton of nutritional deficiencies and as I take my supplements I think it is getting better. Ask your doc to do a really thorough vitamin and mineral panel. I found out I had some pretty severe kind of unusual deficiencies. Apparently Crohn's patients are often really low on zinc and magnesium so you could start there.
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