Posted 10/27/2012 2:42 PM (GMT 0)
In the last several weeks, I have been getting pain when I eat slightly to the right above my belly button. It's pretty localized to that spot, but it also can be extremely tender about a fist size above. A few nights ago I went to the ER because the pain got up to a 7. A CT scan and ultrasound only showed a partially collapsed ovarian cyst (which would explain the pain down there, but that's been mild compared to the upper abdominal pain). No strictures, abscesses, fistulas, or blockages showed up.
I only have had a very mild fever (which they're not even counting because it's a high 98, but that's high for me since my normal is 96.8-97.1). I am having normal BM's for the first time in forever (thanks to Remicade). It's not my pancreas; my lipase and amylase levels are normal. I also don't have much of an appetite, but since I finished a prednisone taper a week ago that's normal.
I didn't have any changes in meds or diet. The pain comes and goes, and I thought it had faded after the ER visit and the wonderful dilaudid they gave me, but I did an echocardiogram (my heart rate hasn't been under 100 in a few weeks; my sitting heart rate was 135 when I saw a surgeon two weeks ago for my fistula) and when the woman pushed to see the bottom of my heart from my stomach above my belly button, I just about came off the table. It hadn't been hurting on its own, but she pushed down and I realized the pain wasn't something I had been "imagining" (I always worry about that when tests don't show anything).
My body doesn't absorb oral meds - high doses of oral dilaudid do nothing, and I can take 20 mg of ambien and still be wide awake two hours later. Even if it did work, I don't want to just mask pain, I want to know why.
Does anyone have any ideas or suggestions? My PCP didn't know where to go from here. I haven't discussed it much with my GI yet because I want to have ideas if it's just "phantom pain" or if it could be something real, you know?