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Feet, Ankle, Leg pain from Crohns?

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Posted 10/6/2010 7:05 PM (GMT 0)
I've had Crohn's for 12 years and am pretty lucky because I have to say that most of the time I feel pretty good.  I take Pentasa daily.  The past 3 months or so I've had lots of pain in my ankles and feet, which now has moved into my lower legs.  It feels like the muscle cramping that you have after you have a charlie horse, but it's pretty much constant.  Lots of pain and numbness at times.  I went to see my regular doc and he ruled out arthritis and said the blood flow is good, and said it could be a neuropathy (nerve) condition, but said that it could also be related to my Crohn's.  I know that I often have joint pain because of my crohn's, but do any of you suffer with this heavy and painful feeling in your legs as though they were made of wood?  He said that it could be the crohn's causing inflammation in the tissues.  I had a stye several months ago and my eye dr. said it was related to my crohn's also.  What next?   Going to see my g.i. next week.  My next step is to a neurologist.  Thanks so much for any answers.

Post Edited (ragbag) : 10/6/2010 2:06:31 PM (GMT-6)

Posted 10/6/2010 9:18 PM (GMT 0)
I've been having a lot of leg cramps lately (feet, calf, hamstring) that I usually attribute to a mineral imbalance, probably from poor absorption due to Crohn's. I just deal with it and try to stay hydrated and eat a lot of raisins and bananas.
Posted 10/7/2010 12:27 AM (GMT 0)
I was having a weird cramping/stiffness in my legs. I found bumping up my B12 helped. I had looked it up on this forum and found that was the general idea that it was B12 deficiency.
It helped me.
I also get stiffness and joint pain when im flaring a bit, or about to start flaring.
Good Luck!
Posted 10/7/2010 4:13 AM (GMT 0)
You could need calcium. 

Julia

 

Posted 10/7/2010 4:44 AM (GMT 0)
I have had this symptom. All the above is good advice I think. Mostly went away for me right now but still sometimes feel like I am "close" to a charlie horse or foot cramp at times and it doesn't go away right away like a "normal" cramp.
Posted 10/7/2010 1:34 PM (GMT 0)
Same here- I have and have had these symptoms and like funguy said- good comments above. I really hate it when I get those lumps on my calves and feet... I forget what they are callled.... the red bumps that last a few weeks an hurt an itch and burn and then turn into bruises. Anyone else have these?

B
Posted 10/7/2010 1:38 PM (GMT 0)
Joint pain is often a precursor to a Crohns flare. Could be that you are also low on Vitamin B12. Another suggestion that I found helpful was adding Vitamin D3 to my med regimen. In about 3-4 weeks after starting it I found I was feeling much better. Maybe ask your doc to check your B12 and Vit D3 levels. Good luck!
Posted 10/7/2010 5:06 PM (GMT 0)
I had all of your symptoms and pretty bad drop foot. I went to the neurologist He had blood work done and a conduction test. The blood work showed I had mononucleosis in the past and the conduction test showed that I had a nerve blockage on the outside below the knee. He said that he has seen folks with C all of a sudden attack a nerve thinking the mono is again active. He also said it could be from something as simple as sleeping wrong. In both cases the treatment is the same. I took a steroid (I forget which one but not Pred) and Metanx (a B12 specific for the neuropathy. I will be on this for the next 6 months). Over the last 3 to 4 weeks I have been getting much better. Pain and cramping all gone. Neuropathy about 90% gone. I hope you are better soon. I know not having my feet work correctly was worrying. I am no expert but going to the neurologist seemed to be the right call for me and might be something for you to consider David  
Posted 10/7/2010 7:09 PM (GMT 0)
During my first flare I had terrible joint pain in my ankle, but only when I moved it. In the hospital an orthopedist drew fluid from the joint, but was still stumped. I had to use a cane to get around. It even got kinda purple and swollen. After starting pred though it rapidly got better and hasn't bothered me since.
Posted 10/8/2010 6:08 PM (GMT 0)
Thank you all for your helpful advice.  I will speak with my g.i. on Monday and hope that she can point me in the right direction. 
Posted 10/8/2010 7:49 PM (GMT 0)
I hope you find out what's causing the pain ragbag! Right before my last flare I had horrible pain in my right foot. It was on the bottom close to my toes, and almost felt swollen and inflammed. Then my hand did the same thing, and finally my lip swelled up like a balloon! The inflammation can do odd things to us!
Posted 10/9/2010 1:19 PM (GMT 0)
I was at GI yesterday and told her i had minor joint pain. She reduced my pentassa to only 2 x 500 per day. She said pain can come from pentassa,
David
Posted 12/17/2012 2:55 PM (GMT 0)
My brother was dignosed with Crohns disease about 15 years, He was hospitalized with severe leg pain and swollen feet and knees. They cancelled his sugery today to remove part of his intestine. The doctors have no idea why his legs are swollen. It seems to be more then vit B
Posted 4/24/2013 7:48 AM (GMT 0)
Hi All You Crohns sufferers...
I have just been reading and I really needed to tell everybody this, buy a book called 'Self healing colitis & crohns' written by David Klein and follow it to an absolute T and you will heal your crohns/colitis. It worked for me.
I was diagnosed in Summer of 2004 at the age of 23. I did not want to take the dangerous medications for this, as I felt using them everyday for the rest of my life was not going to be good and cause other problems in the process. So my search begun to find an alternative way. My Specialist hated me as a patient and basically washed his hands of me saying "I have no cure and neither does anybody else, take your head out of the sand and come back to me when you are ready to accept my medication". Long story short.....I went back in March 2011 having found this man - he also has a website with millions of testimonials on there.....just type in David Klein Self healing colitis & crohns into google. I requested a colonoscopy cos I felt the best I ever had since being diagnosed - and without any medication!! The person undertaking the colonoscopy, said to me "whatever it is you are doing Zoey, continue doing it as there is no ulcerations, no inflammation, no irritation....this looks like a normal healthy bowel" yes I did it!!!!! When I went back to my specialist some weeks later for the results of the biopsy - he merely said "I am glad you are well, keep it up, I shall not take you off my patient list because you just never know. Take care see you in 12months time" !!!! Wooohoooo!! Please please please believe me it works - buy the most important book of your life NOW!!! Please let me know how you get on! Thank you & God Bless xx
Posted 12/1/2018 9:12 PM (GMT 0)
I was searching the symptoms you described and came across your post from 2010. Do you still suffer from these symptoms? Your description matches what I have been going through the last ten years with the pain starting in my feet and ankles and moving up my legs to my knees. A neurologist said it was peripheral neuropathy and my gastro guy said he didn't think it was related to the Crohn's, but it seems like pretty much everything is. I take B12 and Alpha Lipoic Sustain and wear comfortable sneakers, but nothing makes the pain go away. Have you had any luck? Thanks.
Posted Today 2:22 AM (GMT 0)
I as well suffer from a lot of pain and numbness in my extremities. I've seen a neuroligist rheumatologist and pcd. I was put on cymbalta and gabapentin . I know they help because if I forget to take them I can't even get out of bed due to severe pain. My left hand goes numb like 90% of the time. I even wake up in the night with my left arm feeling like it's being cut off at the elbow. Pain radiates to fingertips. Now for my legs. If I sit for more than 15 minutes then I'm very stiff when I get up to walk. Sometimes I lose my balance. My right hip hurts a lot too. I've had to get cortisone shots...which only helps for like 10 days. Every evening both legs are retaining fluid. I take hydrochlorothiazide. I also take vitamin d2 and bit B12. No one seems to know why I'm having so many problems nor what's causing them. I'm just so tired of having pain all of the time. It's really affecting my life. I'm sorry to hear that others are having similar problems.
Posted 12/8/2018 10:12 AM (GMT 0)
Wow, not sure how my post of 8 years ago suddenly popped up! I barely remember writing it. I believe my discomfort had a lot to do with planters fasciitis. I have since gotten orthotics to wear daily in my shoes, so something pretty simple made me feel much better over time and overall. I also since have been diagnosed with blepharitis and dry eye, so use systane drops daily. I still mostly look like I have been crying because of my pink and swollen eyelids, but things could be worse.
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