Posted 12/19/2012 1:03 PM (GMT 0)
I had a total colectomy (maintaining my diseased rectum) 20 days ago, were dismissed 5 days ago, and now I take a temporary ileostomy.
I'm adjusting with ileostomy and at the moment, although I don't like having it, and I'm observing I don't know if I'll be aple to accept it as a 31-year-old single male, if become permanent (there are still chances it's Ulcerative Colitis, and moreover the doctor thinks the rectum could heal as it's resting now), my worries are all about histologic exam of my colon removed.
My last biopsies, 1 year ago, said no cancer at all, and low grade dysplasia, which my doctors were not worried, as they said it's just the inflammation.
But I'm afraid as I had pancolitis, probably Crohn's pancolitis, and 12 year of disease, never in remission (I managed it a bit with diet, but the poor colon was always inflamed). I'm waiting from days for this exam and still didn't arrive.
I read some scaring stories about cancer and Crohn's, and being very hypocondriac and anxious, now I developed the idea they probably found cancers and are analyzing the gravity of that.
Everyone is trying to reassure me, but I can't manage to think I had just crohn's. I already requested psychological help, but don't know when I'll be able to get it.
Anyone have a word for this? Am I just crazy?