Desparately need my Crohn's friends during this surprising downturn **Updated & Diagnosis**

Thursday night I suddenly developed severe abdominal pain, passage of many stools and then frank bleeding. The pain was so bad  I was forced to head to the ER. Admitted and a CT exam revealed problems in the sigmoid colon, the same place where I had had a C. diff hemorrage in 2010. Everyone thought C. diff again in spite of no antibiotics in months tho the on-call GI felt I might have ischemic colitic because of my age and history.

This GI not being a chicken, and my rapidly dropping hematocrit and hemoglobin found me getting a colonoscopy this AM. Surprises of all surprises, my colonoscopy found, and I quote, " ...segmental area of moderately congested, eroded, friable (with spontaneous bleeding), granular, inflamed scarred and vascular-pattern-decreased mucosa was found in the recto-sigmoid colon, in the sigmoid colon and in the descending colon...." Biopsies were taken through out and I await this on pins and needles.

With reluctance, they discharged me because I do not handle hospitals well and the active bleeding seemed to have stopped. I am to follow up with my GI once the path reports come back. The scoping GI strongly believes this is not ischemic colitis but rather another flare-up of Crohn's. Previous CT scans in 2007 [2 that year] and one during the C. diff episode of 2010 all referred to the same area on the CT scan I got yesterday morning.

I am at the end of my morphine supplemented ropes. Has my CD advanced inspite of being on Remicade, Humira, and now Simponi?

What I need from you is a list of questions to ask. I likely won't be able to see my GI until after the 1st of the year but I must follow up with someone this week because my electrolytes are so out of wack. My brains are fried because I have had so many drugs and have not slept in three days.

I guess more than anything, is I have never felt so down or helpless except for when I was first diagnosed and you all were here for me. I needed you then and you got me on the correct track, please help me now.

I'll check back tomorrow and perhaps won't sound like such a blathering idiot. I also think I need to pull all the previous CT red flags that a variety of doctors poo-pooed and compile them as a show and tell me why this didn't concern you then list.

Sorry to be all over the place - this is the 3rd holiday season in a row I have screwed for my family - feeling MORE than a little sorry for myself.

I do see the path that others are going down....you are cyclical and it does not seem tiime to throw in the towel just yet.  Be adamant about getting the care you need and ask for more options to maintain your remissions longer (changes in dosages an option???). 

I know someone mentioned surgery.  It seems early in the game to be going there for you yet (I know because I jumped to that right away for me and am now thinking I need more patience).  However, I am reading more about that option too so I can really think on it if I do need to go that route.  Maybe you can discuss what the GI thinks of that option and when he would consider it.

I really do hope you are progressing well....keep your fluids up and be gentle to yourself physically AND mentally.  Take care.....

Good health is truly the best Christmas present. Enjoy your holidays.