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Crohn's Disease
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Posted 1/3/2013 8:07 PM (GMT 0)
Hi all,

I have been experiencing diarrhea that won't stop.  I am on day 22 of non-stop, watery stuff.  On average I'd say about 10-15 times a day...nights are the worst.  I wake up about 5 times with awful pain and have to rush to the BR.  I have taken lomotil, immodium, pepto, basically stopped eating, tried the BRAT diet and I am now at a loss.  I also take a iron supplement that usually does a decent job of keeping things "less active" or atleast, somewhat more formed.  I am beyond exhausted and rather raw.  I take lots of baths, use Calmoseptine and cornstarch.  I was really hoping I could avoid the dr this early in the year, but I think I am going to have to go soon.  I am jittery, feel anxious and just down right tired.  Anyone have ideas on slowing down things?  I greatly appreciate it! 

Posted 1/3/2013 11:51 PM (GMT 0)
Hi krw135,

Sounds like you need to see your GI sooner rather than later and get tests completed to see what is going on with your Crohn's, it's activity and inflammation.

What are the other meds you're taking with the Remicade infusions? Any probiotics in your regiment too?
Posted 1/3/2013 11:53 PM (GMT 0)
Here's a discussion about probitoics-

www.healingwell.com/community/default.aspx?f=17&m=2601620
Posted 1/4/2013 12:18 AM (GMT 0)
When I take my pain medication with codeine it will slow things down and I absolutely cannot do dairy. You probably are exhausted, stay hydrated though if you can. Hope you get to feeling better soon!
Posted 1/4/2013 1:40 AM (GMT 0)
Make sure to ask for stool cultures...you may have c.difficile or another bacterial infection.
Posted 1/4/2013 12:15 PM (GMT 0)
Did you try Cholysteramine? It can slow things down. Def, you need to see your doc.
Hope you feel better soon :)
Posted 1/4/2013 2:45 PM (GMT 0)
Thanks for all the advice. I do also take probiotics...I take VSL#3 double strength. I finally gave in and put in a call to my GI. Not even pain meds is slowing things down, this is not fun at all. I had to call in to work today bc I am just drained.
Posted 1/6/2013 2:50 AM (GMT 0)
Ok this may be gross but hey most things are, lol. I was diagnosed 5 days before my 22nd birthday and have not had a solid stool since then. The big thing I have to watch for is dehydration. If it gets to the point where you are super worried about it then I say call ur GI or even visit the ER.
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