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What do you use for pain?

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Crohn's Disease
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Posted 1/8/2013 7:53 PM (GMT 0)
So just wondering what everyone else uses for Pain?  I am currently in a flare, I went to ER couple weeks ago for intense cramping pain, pretty sure obstrustion pain from strictures, in the past I had used Darvocet for pain and it usually worked well.  It is no longer on the market so Doc. gave me oxycodone for pain, so I gave it a try when I felt the pain becoming unbearable and it didnt do anything for me, but make me nausous, called the ER they said it safe to take another and if it didn't help in an hour to come on in..  So Hour went by,nothing,the pain was so intense,just feel like it made me feel very wierd in the head and nausous.  So at the ER after couple injections of morphine the pain went away.  Told the ER doc.the pain med didn't seem to help at all, he gave me RX for Tramadol, is anyone familiar, Just know with the darvocet it worked for me and kept me out of the ER a few times!!  Thanks for any input!
Posted 1/8/2013 8:24 PM (GMT 0)
JL Cat,
Tramadol, white oval "tablet", when I hurt I drop one seems to work on pain more than anything. It helps, the other stuff does not seem to cut it.

T
Posted 1/8/2013 8:28 PM (GMT 0)
If you know that you have bowel obstruction from strictures, you have to be very careful, because severe bowel obstruction can lead to bowel perforation and other life-threatening event.  Pain is just the symptom.  You need to treat the underlying disease by a GI who is familiar with Crohn's. 
Posted 1/8/2013 10:16 PM (GMT 0)
Been on Pred for a long time, so no need for painkillers until recently; took one the other night for a painful partial obstruction - diclofenac in suppository form >_>. Yeah, I know; not really Crohn's friendly, but this stuff expires in March 2013, plus it actually works. I couldn't use it in my last flare-up because, y'know, suppositories and an anus which feels like it's had a million miniscule shards of glass pushed into it don't really go together... <_<.

Otherwise, normally use tramadol or codeine + 2 paracetamol. Co-codamol is useless; the OTC stuff only contains 8mg of codeine. You want the 30mg tablets of codeine at least..

PS: Paul is right, if you suspect an obstruction, you should not use any painkiller which slows the bowels down further, eg any opiate-based painkiller. I have done it in the past, but not really a great idea. Best to move to a thin/clear liquid diet and go to hospital if it doesn't resolve within a day - or earlier if the pain is unbearable.
Posted 1/9/2013 11:41 AM (GMT 0)
You should go to your GI and see why you are having so much pain. You shouldn't be having that much pain.i can't really help too much on pain medication as the majority of the prescription meds make me vomit literally. And I am a person that very rarely vomits even if I'm nauseous I don't vomit. But Darvocet, oxycodone, tramadol, they all make me puke several times. I had surgery and was given Darvocet and had to get a different one so they gave me Tylenol 3 which wasn't fantastic but it took away some of the pain and made me sleepy.. Not much help am I? Lol. But please go see a GI about your pain.
Posted 1/10/2013 12:52 AM (GMT 0)
I ask my GI Dr every time I go, what can I do when I'm having intense pain and I never get an answer. Tylenol does NOT knock the pain out, so I just try to take a Tylenol Pm and try to sleep through the pain. when it hurts during the day, I do a lot of breathing exercises. The pain is horrible, intense, but for me it comes in waves, almost like a labor type contraction.
Posted 1/10/2013 1:37 AM (GMT 0)
I take tramadol when needed.  I find that it is pretty effective and doesn't effect me cognitively, so I can still go about my day.  Anything stronger just knocks me out.  As a lot of people already said, if you are having pain, something is wrong.  Either scar tissue, an abscess, or inflammation.  The main goal should be to figure out what is wrong and tackle that.  Pain meds should just be short term to hold you over unil you can take something that solves the problem. 

I think a GI SHOULD give something if you are in pain.  Misspriss - have you tried asking him directly?  It sounds like the 6mp isn't working.  I had the same type of pains when I was on 6mp.  If your GI won't give pain meds, I would try your general practitioner.  I don't think they should give you a hard time as long as it's just for temporary relief.

Posted 1/10/2013 10:37 PM (GMT 0)
That contraction like pain is typical for partial obstructions. Is your doc trying some different meds or suggesting surgery? I agree with the above posters...you need to figure out what is wrong, not just treat the pain
Posted 1/11/2013 1:58 AM (GMT 0)
I start w antispasmodics (Trimebutine and otilonium bromide). When I'm in severe pain, my GI told me to take 4 of the 2 types w a total of 8 tablets/day. If they do not stop pain I have to take Visceralgine injections (Tiemonium Methylsulfate). If pain is still persistent I have to take a ketrolac injection (NSAID) though it is not safe for Crohn's. If after all this, I'm still suffering, I have to go to the ER.
Hope you feel better soon :)
Posted 1/11/2013 2:12 AM (GMT 0)
I told my GI but he said he cannot prescribe pain pills, he just assured me when my meds started working my pain would decrease...
I had been in pain for like 6 months so I went straight to my family doctor he prescribed me some weak Valium (diazepam) for muscle spasms, but it didn't do anything so I don't take them. He also prescribed me lorcet plus. Now I take this perhaps once a week as an when needed. The idea of becoming tolerant to pain meds scares me so I try to take as few as possible but it's nice to know there's stuff out there when it gets unbearable!

(When I first got the pain, I was in hospital and they had me on a mix of Tylenol, tramadol, oramorph and the morphine patches!) it sounds crazy to relay it back but I really did need all that at the time!
Posted 1/12/2013 1:28 PM (GMT 0)
My dr has done some lab work and will be upping my dosage of 6mp to see if it will help with the pain. The pain has decreased, but at least once a week I'm having a "cramp" like type of pain. No mention of surgery ever.
He did mention that if the pain doesn't get better (only been on 6mp 1 1/2 months now, so it takes a while to get in system), that Cimzia is the next plan. I have heard that is really expensive though so I hope my insurance can get a lower copay.
Posted 1/14/2013 1:39 AM (GMT 0)
Thanks everyone for your input, I have been to my doc. since my recent ER visit, I am definitly in a flare, he put me on 9mg entocort, and some antispasm drug to take as needed.  He was ok with me taking the tramadol to get me through when I am having pain.  He wants to give me some time to let the Entocort work, I am also on Imuran 200mg, I have been on it for about 2 years so kind of evaluating if that is working for me.  As for as pain meds., I have gotten to the point that I have had this disease for about 13 years now, that if I am in pain why sit and let it just beat you down, if your doc. is ok with prescribing something then take it!!!!  I am very conservative about taking them, but you know what they help, yes you need to take care of the underlying problem for the pain I totally agree but in the mean time till you get it under control, I don't think there is any reason to have to suffer in pain! If your Doc. doesn't agree with giving you something i wouldn't hesitate to ask my GP, can't understand why a GI wouldn't prescribe something? This can be a painful disease!  Thanks for listening!
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