So I have had strange swelling spots in my mouth going on 8 months now. They look kinda look ulcers only the skin is not erupted and there is NO PAIN and NEVER has been pain this entire time in my mouth.
Pictures will be included at the bottom.
Also, these are not recurrent spots or ulcers; I have had the EXACT same areas the entire 8 months. They simply "grow" or swell up more every single day at a very slow rate, and more of them turn up as time goes on. I have not seen one spot go away EVER.
I have been suffering with this for 8 months with absolutely no relief or sign of anything being done.
Towards the beginning, I had a biopsy done, which didn't have any conclusive results. I was told there was a slight sign of Sjogren's, so I had many blood tests done and have been on Hydroxychloroquine and Pilocarpine for 4 months now. Absolutely NO relief or anything, the symptoms have continued getting worse and still are every single day. I do not believe it is Sjogren's (haven't really had noticeable dry mouth problem and no dry eyes to begin with).
I have also been on Prednisone, I was on 5mg for a week, 10mg for like a month, and 20mg for a couple of weeks, and I never really noticed anything. The swelling may have not been getting worse during my 20mg doses, but it never improved. I'm thinking 20 is too low.
I have tried everything the doctors have done and bought many vitamins (A, B, D, Zinc, Probiotics, Fish Oil, tried anti-histamines, etc). Salt water, switching to natural toothpaste and mouthwash, NOTHING WORKS!
I am at a loss, but after searching around forever and never seeing any images or descript
ions that match what is going on in my mouth, I have come to the conclusion that oral manifestation of Crohn's is the most likely condition. I've read people can get general swelling, cobblestone like bumps, and can be completely painless while also showing up without other Crohn's related symptoms for multiple years.
Please, someone steer me in the right direction and help me figure this out. I can't live like this forever and that's the way this feels. I am borderline suicidal and just hopeless. It is awful when every second of every day I feel my swollen mouth and am afraid to
open my mouth to talk to people and the fact that it gets worse day by day without a single sign of a solution for 8 months.. I need help. I feel like i'm never going to have a normal mouth/lips again...
The swelling is rather easy to notice, but the actual bumps or spots or whatever are kind of hard to see in picture.
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