Hair Lose and Crohns

I lost some hair there for a while too. It is better now and I just thought it might be from some of the meds I was taking. My hairdresser noticed it and said something to me about seeing a doctor because of it. Now she is very cautious about perming or coloring my hair.

I've also noticed a marked increase in loss of hair (when brushing and showering).  I also have long hair to below my bra strap.

*I am hoping it is only due to teh twice-yearly "shed" that normally occurs.  It usually happens in spring and fall...it is something I've noticed over the past 20+ years.

heidi

I am fairly certain I am losing my hair from my pentasa. I am using rogaine now to keep more from falling out.

i had hair loss only once when i started taking iron the first first time. but since then i've been ok.

I am sure it was the pentasa or Imuran I was on before Humira causing my hair loss. I took Folic acid and Biotin when I remembered... It seemed to help some but I bet I was not absorbing the vitamins well... I was flaring at the time. talk to your Doc. you might need to take some Folic Acid. Karen

I have intermittent hair loss. I think it's mostly from stress. Whenever my Crohn's is flaring (usually when I'm stressed). I shed tons of hair but for some reason my hair doesn't appear thin. It is frustrating! Good luck. :)

Lin...like everyone else said....meds and vitamin absorption have added to my hair loss (no hubby I did not get a dog and not tell you!)

I found that the Pentasa increased my hair loss. On top of that I am anemic. I also discovered that brittle hair and hair loss is increased when you eat VERY low fat. Since I often go low fat when my gut is struggling, I notice an increase in problems then.

I am losing hair with Crohn's, without being on any CD meds. If this keeps up I'll have to shave my head!

8 years ago, my hair started falling out by the hand fulls. All the hair along my hairline for about 2 - three inches was gone. I kept asking the doctors. First they said it was post pregnancy then they said it was my birth control, then they said it was just from having a flare with my Chron's. Finally, I met a girl who had UC and she told me that Asocol made her hair fall out. So, I quit taking it, and low and behold my hair grew back. Since then I have refused to take anything but Entocort when I have a flare. It works great for me. Every few months I take it for two and then taper off. Then I will have several good months and then when I feel like I'm having a flare I start taking again. NOW, my Doc says I can't keep taking it. and wants me to take Lialda. I have 0 side effects from the Entocort. No swelling, no bone loss(I had a scan), no fatigue, no mood swings. I have no doubt, that my hair will again fall out with the Lialda. It's the same stuff!! and in addition, I have researched and it is for release in the large intestine and the colon. My disease is in my Terminal Ileum. It is my opinion that the doctors don't know what they are prescribing, Some company rep, says "here give them this" and they say. OK. I am very frustrated because I told my doc I did not want to take Asocol and she said she was putting me on a new drug to try and when I researched it, IT'S THE SAME DRUG, only a time released formula. WHY CAN I NOT KEEP TAKING WHAT WORKS? I ask her and she says, you just can't keep taking the steroids. Why the heck not? I'm not on them continually. I'm just frustrated and tired of the run around.