* descriptive* any suggestions appreciated.

 

  I have been a Crohns sufferer for years.  I have tried all meds leading up to  Remicade, which I took 5 times until I developed an allergic reaction & was tested to see if I had the antibodies, which I did.

Went thru a divorce and got kicked off his healthcare and had to fight for 15 months to get the state insurance.

During that time I have had no healthcare, besides an ER visit, resulting in a 2 day stay for them to do a blood transfusion, due to be having a count of 2. ( they were shocked I could walk, said I should have stroked out).

But,  due to not having any insurance at that time, they did nothing above and beyond, let alone looking for anything to help my Crohns( I was in on a Fri- out by noon Mon).

My question is....

   For over a year, no matter what I eat or drink, everything that leaves me is in liquid form, unless an undigested food, such as a tomato skin or piece of celery.( Sorry for descriptions)   I can not get relief from this no matter what I try, not even Immodium, which used to give me some form of a break.   I currently am trying the VSL capsules(2xa day) bee propolis ( once a day).  

 Is this just the way my body has decided to process things?  Could it be due to thickening of the intestinal track? I have tested neg for celiac.  I have tried every freakin diet and nothing makes a difference.

 I havent been able to leave my home due to this issue and the anxiety it provokes.

 Any advice is appreciated.   Thanks to all for reading and for this supportive board.

Definitely get the prednisone taper. Would the state insurance cover Humira? That is supposed to be a good alternative to Remicade once you get the antibodies.

Also, try the BRATY diet: Bananas, Rice (white), Applesauce (not apples, as non-processed as possible), Toast (white bread), and Yogurt. If even that is hard, try them one at a time for a few days. It's a bland diet that gets old fast, but it might help.

Also, some people have success following the SCD diet - I don't know much about it, but it works for some and could be a good place to start as well.

Best of luck!!

Read the book "breaking the vicious cycle" about the SCD diet.  It has worked for many people , me included. Diets don't work overnight.  It takes two or three months of dedication before you start seeing results. In my case it was about four months before I started to see results kick in.  The key to getting diets to work is 100% dedication.  If you cheat and eat foods that aren't on the diet, you are just wasting your time and it will not work.

I heard that Bentyl (dicyclomine) is rather effective in slowing down a spastic colon... this might allow your GI tract time to form stool. It's definitely worth a try... I got mine while I had medicaid, so I'm not sure what it costs; however, I will go and check. It's usually used in IBS patients with D... however, I'm sure that it might be an option for you.

Have you looked into some sort of community health center? Depending on where you live, different counties will have those as an option and they are dirt cheap, or free. My primary care (the BEST doctor I have EVER had) works at a community health center and I love it there and it's free. Otherwise, health departments sometimes do primary care programs of sorts - that's something to check into. And... just a thought because I am currently going through this right now... since I lost my medicaid, I am a full time student, and just now got a job, I can't really pay to see my GI even though I need to. His office, come to find out, has a somewhat 'secret' financial assistance board. You should check with a GI office in your area to see if they have a financial assistance program for patients that cannot afford paying for an office visit. My next visit is going to be free because I got into their program. It's worth a shot, too!

Best of luck,

Jade