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Remicade Every Two Months, Another Obstruction Starting ???

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Crohn's Disease
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Posted 2/18/2013 7:02 AM (GMT 0)
Hello fellow crohns members

I am new to tis forum and am kind of worried about my situation with my disease.  I had emergency surgery in 2009 and they resected 11 inches of my tummy into my colon.  I have managed my disease ok until last year when they found a reoccurrence with my colonoscopy and put me on remicade infusions.  I get these every two months but have recently had a flare up and was unable to go the bathroom and started vomitting which is how I ended up in the hospital the first time from a blockage.  I am having trouble after getting out of the hospital with having bowel movements, it was ok at first and I have been not eating a lot of food, just soups and maybe a bagel and I'm concerned that things are just not moving how they should be.  I take miralax to help with this situation and this is not helping me either, so I just wonder if anybody else is having this issue or has had the issue?  I'm worried I'm heading towards another obstruction and if anybody has a good remedy to keep things moving safely that is natural. I don't think its good to use laxatives all the time as this could make your colon not know how to work naturally?  Any advice would be greatly appreciated.

Thanks

Kellie

[* Just added a title in the Subject line - C2]

Post Edited By Moderator (CrohnieToo) : 2/18/2013 12:13:45 PM (GMT-7)

Posted 2/18/2013 7:19 AM (GMT 0)
Hi Kellie, Welcome to HealingWell. Sorry for the problems your
having. Have you talked to your GI's doctors office? Maybe they
need to up your Remicade dosage. When I used Remicade in the
past my dosage had to be increased which helped me.
Posted 2/18/2013 7:28 AM (GMT 0)
Hi teddybearweiser

I just got out of the hospital with scar tissue from prev resection just last week. I had the same issue here recently and was able to avoid surgery again but things are just not moving normally and I'm concerned. I travel for my work and am going home this week and will see my gastroenterologist. I need to know what I can use for laxative that will not cause me problems. I ususally am the opposite, don't need help but something has changed recently and I'm getting to the point of not eating any food, just liquids to see if this will help me pass.
Posted 2/18/2013 12:33 PM (GMT 0)
Eating very little food can slow things down and cause constipation in its own right. Drinking liquids only is the way to go if you have a suspected obstruction, but that's at the point where there is little doubt what is going on: wave-like pain, nausea, etc. I think - understandably - you've just become scared of eating.

And, of course, having a stricture can slow things down as well. I have found that. Without actually going so far as causing an obstruction, food feels like it gets backed up at the stricture and takes a long time to pass through.

It sounds counterintuitive but eating more may actually help kickstart your digestive system into action and promote peristalsis (constractions of the intestines). Needless to say, avoid the All-Bran and stick to safe low-residue/fibre foods. Miralax is safe to take for a long time, btw, as, unlike stimulant laxatives, it shouldn't make your bowel become lazy. But I do understand the reservation about being dependent on a laxative to go.

Good luck, hope the problem resolves itself soon.
Posted 2/18/2013 7:10 PM (GMT 0)
Eat less more often. Six small meals a day rather than 3 large meals. Eat just one graham cracker a day. Or drink one small can of prune juice a day. You just want to soften things up rather than push things thru. But you need something for your bowels to push thru meaning you have to eat. Eating bland soft food can help and CHEWING your food THOROUGHLY can also help.
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