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Crohn's Disease
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Posted 3/28/2013 3:07 PM (GMT 0)
I have just been diagnosed with Crohns. The problem I'm having at the moment is the horrendous pain down below when I go to the toilet and at the moment that's anything up to 6 times a day. I am on mesevant and the consultant has advised steroids but awaiting on these from gp. Just wondered if anyone knew if I could do anything for the pain down below :( the colonoscopy report said I have peri anal skin lesions?? This is so miserable, I can't stand the thought of loving like this.
Posted 3/28/2013 4:44 PM (GMT 0)
I am having the same issues. I am on Pentasa and waiting to hear back from the dr. I have never had a flare or any problems since being put on Meds in 2000.
Posted 3/28/2013 5:38 PM (GMT 0)
It's horrendous. Puts you off eating or drinking which prob makes u worse. I hope someone can help provide some answers :((
Posted 3/28/2013 5:51 PM (GMT 0)
What kind of pain? Where is the pain? Is it cramping pain that goes away after the BM? Is it in the abdomen? Is it a burning pain in the canal or around the anus?

Sorry for the direct questions, but there are a lot of folks here who have had a variety of pain. If you can help localize the area and describe the type of pain, I think that would help someone who has experienced your specific issues relate & share their experience.

One thing that has helped me, in general, when I'm having a flare and bouts of any type of pain anywhere in the GI tract, is to really soften my diet. I avoid raw fruits and veggies. Most fruits and veggies, actually. Citrus juices irritate my GI tract. I avoid beef, high fiber foods, and deep fried foods. I've occassionally gone on a liquid, or mostly liquid diet for a day+. I have replaced calories in my diet with Ensure or Boost drinks. These sort of changes reduces the amount of solid food in the GI tract, and can give your bowels/anus a chance to rest or at least work less.
Posted 3/28/2013 8:18 PM (GMT 0)
Sorry for not being too specific and thank you for posting. The pain is when the diarrhoea is actually passing out and for a long time after it. Like a really intense burning, stinging, Jagging, awful pain. It actually reduces me to tears. It is also very uncomfortable sitting down on chairs etc at the moment. I am quite good with tolerating pain but this just horrendous. Any time the anal muscles need to do anything then the pain is awful. Does this make sense? I really welcome and appreciate your advice. Feeling a bit scared and like there's no light at the end of all of this!! Very debilitating.
Posted 3/28/2013 8:21 PM (GMT 0)
Also can I take any painkillers?? Or do they irritate the gut worse?
Posted 3/28/2013 10:16 PM (GMT 0)
Hi I am a 13 year old kid who was just recently diagnosed with Crohn's disease. does anyone have any tips on how to manage the pain?
Posted 3/28/2013 11:18 PM (GMT 0)
You might have anal fissures. When I had them it felt like I was passing razor blades or glass pieces. My GI prescribed lidocaine gel to apply to numb the area. He also gave me steroid ointment to apply.
Posted 3/29/2013 5:47 AM (GMT 0)
I agree with Ides – you may have anal fissures. Steroid cream/foam/suppository can help. Nitroglycerin or nifedipine ointment can help to increase blood flow to the fissure and promote healing, and to help relax the anal sphincter. Also, soaking in warm water for 10 to 20 minutes several times a day, especially after bowel movements, can help relax the sphincter and promote healing.
Did your GI examine you there? Fissures can be seen in the office examination.
How are you being treated for dria? If your current meds not addressing your issues, you may need new treatment plan.
Posted 3/29/2013 10:42 AM (GMT 0)
LB
It does sound like you have a fissure, (ouch!) and you have gotten good advice.

Jim B
I see this is your first post. You will get more responses to your question about managing pain if you start a new post, introduce yourself and describe what kind of pain you are dealing with. Welcome to Healingwell and I hope you feel better soon : )
Posted 3/29/2013 12:59 PM (GMT 0)
Good advice here on the fissures. As exit 4 asked, did your GI examine you there? An abcesses is also a possibility. I haven't had a fissure, but my first abcess was very painful and gave me a lot of problems with sitting, etc. Soaking in a warm tub as exit 4 noted, also helped relieve some of that pain. But eventually, you will need your doctor to deal with it.
Posted 3/29/2013 9:41 PM (GMT 0)
There's some great stuff that you can get (or can ask the pharmacist to get for you, if they don't normally carry it) called Calmoseptine. It works very quickly, when the pain just afterwards is so bad that you don't think you can walk, except like John Wayne after getting off a horse. For me, it works way better than lidocaine when the pain is that bad.
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