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Anyone tried the Paleo Diet?

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Crohn's Disease
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Posted 4/27/2013 7:58 PM (GMT 0)
I do low a low carb diet which is really similar, but I don’t bother with the grass fed meats. I have someone who I work with says it keeps her crohn’s down (she does the paleo diet). I can certainly say the diet has helped my UC from spreading, but did not cure it.Most definitely helped and it has never spread out to the rectum.
Posted 4/28/2013 1:18 PM (GMT 0)
Cheers, skofbengsk. That sounds more than liveable with, tbh. A bit like you, I got so used to having diarrhoea that when it eventually flip-flopped the other way and I became constipated, I absolutely hated it.

I'm gonna presume you don't have any disease in your rectum? This is what bothers me a bit. The surgeon said I had disease there, when I had basically thought it was disease-free. I'm trying to think why I thought that now and can't come up with any good reason for it. The only thing is, I doubt it's bad disease: my Crohn's colitis was at its worst in the transverse and right hand side, milder on the left side. That's something I'll have to find out and talk about. To be fair to the surgeon she didn't rule it out for the future; but she did advise me in no uncertain terms not to think of my ileostomy as temporary and that if a reconnection failed, I would have to go back to an ileostomy.

I can live with an ileostomy for the rest of my life if I have to, but I don't really like it very much. Despite myself, can't help hoping for a reconnection really, but that probably makes it harder to accept the bag. I wouldn't want the operation right now anyway - haven't got over the last one! I'll decide in a few months' time.
Posted 4/28/2013 2:59 PM (GMT 0)
I have never been told of any disease in my rectum, at times it would feel as those it were inflamed but usually only when all hell was breaking loose and I think everything was inflamed during those times. I never saw any disease through pics from my scopes, and Dr's never mentioned it. But I have found Dr's seem to think they can pick and choose what they want to tell you, like my GI that just said it looked "really bad in there" which I took as lots of inflammation when in actuality it was a mass of inflammation, multiple fistulas, and an abcess. And in reading my medical reports that took me months to get from my dr I found that I also had liver inflammation and scoliosis, and I don't remember what else but there was a bunch of stuff in my file. The same Dr also refused to have my lab work CC'd to me, which all of my other Dr's have done and usually without asking. Anyhow, I hate Dr's esp the GI's and surgeons and am thankful that my Dr has put me on call me if you need me instead of regular visits.

There is nothing wrong with hope, I still hope that one day I will be able to eat whatever I want and not have to pay for it lol. As long as you don't let it get you into a state of depression then hope is a good thing. If I did not have hope that I would find what was causing me to be so sick all of the time, and driven myself nuts reading and searching I never would have found it. I don't like it, but atleast I found it and can prevent further damage. I still have anger and regret about my surgery, but I can never go back, maybe someday they will be able to grow us a new colon in a lab like they do bladders and skin, but until then I try to be thankful that I have my health back and no more pain.
Posted 4/28/2013 3:32 PM (GMT 0)
Yeah, I have found that most doctors really don't like giving out a lot of info, as though they think you are too stupid to understand or it's none of your business. My current GI is much better than the norm in that respect, which is one reason why I like him, but in the past doctors have been as tight-lipped as top secret government workers bound by the Official Secrets Act.

That's partly the reason why I underestimated my disease for so long. I dunno what my first ever scope showed (enough to diagnose Crohn's, that's all I can say), but in 2007 my scope report said I had 'severe and extensive' disease, and my 2010 scope was even worse. The first doctor I saw after that scope took it seriously: she said that my Crohn's was 'really, really bad' and that I would die if I didn't take anything for it (that appealed to my sense of melodrama <_<). But she vanished into thin air (normal practice in this hospital) and the next doctor I saw was so patronising. He just smirked the whole time as though he were talking to a child, and said something like it looked worse than it really was.

I could've hit him, but I didn't. I just left that hospital and joined my present one, which fortunately was much better. My GI was good, he got me onto Remicade quickly, instead of pissing about with yet more 6MP/Imuran, which hadn't worked before and wasn't going to work now. (Nor did Remicade as it so happened, but neither of us were to know that.)

Hope is good, but I'm not sure what I'm feeling is as positive as 'hope'. I guess I still have the anger and regret. To be fair, it's not solely the Crohn's and losing my colon - there are other things too. The one thing that would be fantastic beyond belief is if new colons could be grown from our stem cells and reattached. I sometimes wished I lived 100 years in the future...
Posted 10/29/2013 1:59 AM (GMT 0)
It never hurts to try it out, i went on it and feel great ever since. It's actually pretty easy to only eat paleo type foods once you get into a routine

have a look here http://paleodietgroup.com/paleo-diet-food-list/ at the foods you can eat and try only eating paleo foods for even just a week, you'll feel great.
Posted 11/30/2013 1:48 PM (GMT 0)
This thread is a few months old but I just wanted to suggest you look up the book Against All Grain. The author had debilitating UC and claims, with photos to prove it, the grain free diet made her well. She has great everyday recipes and I am beginning my paleo journey with this book in hand, praying for healing from crohns too. Another great site I've found for recipes and general info is elenaspantry.com. Elena Amsterdam suffered from another autoimmune disorder and has gained health through the paleo way if eating. Great recipes there too! Best of health to everyone!
Posted 11/30/2013 10:03 PM (GMT 0)
When you talk about processed foods. When I found out that one of my problems was the bean family I was shocked that soy is in almost every processed food, even bread. It is no wonder for a long time I did not think that food did not effect my crohns because even ensure has soy. Once soy was eliminated, things improved.

Your post about yeast now has me thinking. All alcoholic beverages use yeast to turn the sugar to alcohol, I have a strong intolerance to alcohol especially beer. Maybe I need to look stronger at yeast... thanks.
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