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Anyone's dianosis changed from Crohn's colitis to UC?

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Posted 6/24/2013 4:33 PM (GMT 0)
I was dianosed in 2010 with crohns colitis in sigmoid colon(couple of inches) with colonoscopy. Doctor told me rectum was clean(but he did not take biopsy from rectum). He then confirmed diagnosis with Promethus serology test. It came as Crohns with PANCA+/ASCA-(which is normally UC like crohns). I did good for 2 years with Asacol and was in remmission so decided to stop Asacol. Bleeding started few months after that and since then I am in constant mild flare. Recently I changed my GI and he did colonoscopy again and now inflamation is in rectum and left side and traverse colon too. Biopsy still can not tell UC or crohns.

My new GI told me that if I did not have your previous report and if I had to diagnosed now, I would say UC but he is not saying that as my blood test was saying crohns.

Just wondering if your diagnosis has been changed, how were you first diagnosed and what made doctor change the diagnosis?

Thanks.

Posted 6/24/2013 4:41 PM (GMT 0)
I've never been given a solid diagnosis and I don't care.

If you have inflammation in the rectum you need to treat it with rectal meds. The transverse and descending colon need oral meds. The Canasa is probably insufficient to treat the rectum + sigmoid colon - I'd suggest you get mesalamine enemas instead or in addition to the Canasa.
Posted 6/24/2013 5:22 PM (GMT 0)
Not me, I've always had crohn's and still do even though it mainly has affected my colon...it comes and goes in my rectum as well but it's still CD. It's the pattern of the inflammation that determines between it being either CD or UC and mine has always been patchy regardless where it affects me in my GI tract. Patchy is indicative of CD not UC...maybe find out what your pattern of inflammation is.
Posted 6/24/2013 6:40 PM (GMT 0)
panca positive/ anca negative is actually UC or CC (crohn's colitis).
Posted 6/24/2013 8:59 PM (GMT 0)
My disease is patchy as well, which my GI says is Crohn's. I also have Crohn's colitis. He also said I have it in my rectum. I've also had a rectal abscess and fistula. Do you know if your disease is patchy in there or just solid all the way around?
Posted 6/24/2013 10:02 PM (GMT 0)
I've rarely seen a diagnosis changed from Crohn's to UC. It presumably must happen occasionally, but it nearly always seem to go from UC to Crohn's, rather than vice versa.

By the way, I had Crohn's colitis (my colon has gone now) and I had the UC pattern of inflammation: continuous, with no skipped areas. But I had the Crohn's thing of transmural inflammation, ie inflammation through all the layers.

Indeterminate colitis, with features of both UC and Crohn's, is not all that uncommon. It doesn't matter until the point you need surgery, since the drugs used to treat UC and Crohn's colitis are the same. It only becomes vital to decide which is which at the point of surgery, since a j-pouch is usually contraindicated in Crohn's. Some surgeons will give long-standing Crohn's colitis patients who have never had Crohn's in the small bowel a j-pouch, but if you've ever had Crohn's in the small bowel, then that's considered an absolute, not relative, contraindication for j-pouch surgery.

Post Edited (NiceCupOfTea) : 6/24/2013 4:07:32 PM (GMT-6)

Posted 6/24/2013 10:21 PM (GMT 0)
Pam, it's also possible (approx. 2%) for an IBD patient to have BOTH UC and crohn's, very rare but it does happen, generally the pattern of the inflammation differing from CD to UC is the best indicator for which IBD a patient has or if they have both IBD's.
Posted 6/25/2013 4:49 AM (GMT 0)
My diagnosis is the opposite. Diagnosed 18 yrs ago with UC, then last week during a colonoscopy,my gi said she thinks its more indicative of crohns disease, due to patchy disease. I actually was admitted to hosp a couple days ago because flare suddenly got really bad. Still in hosp but glad I can get internet connection so I can keep in touch with this forum !
Posted 6/25/2013 2:41 PM (GMT 0)
Thank you all. All this years I know I have crohns colitis and new GI is not saying other way. He is sticking with crohns. I am going to see him today so I will ask about inflamation pattern continuous or patchy. I don't have copy of biopsy results yet but assuming if it is transmural(?) then biopsy might say that too. I know either way it is not making any difference.

So about serology test, all the crohns colitis people have PANCA+/ASCA-?

Posted 6/25/2013 2:57 PM (GMT 0)
Never had a serology test.
Posted 6/25/2013 8:20 PM (GMT 0)
Mine changed from UC to Crohns and has stayed that way.
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