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low dose naltrexone

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Posted 7/7/2013 8:31 PM (GMT 0)
Hello! I am usually on the UC forum, as UC is my dx...but was hoping someone on this forum can give me any information....has anyone used low dose naltrexone? If so, what dosage and any side effects? Do you find it to have helped your symptoms/control crohn's? Did you have difficulty getting your doc to prescribe it? I know essentially nothing about this drug, as I have stumbled upon articles of LDN today. I am very interested in knowing more! Please respond if you have any info! Thanks so much!
Posted 7/7/2013 11:31 PM (GMT 0)
I don't think I know anyone who uses LDN on this forum. Don't like redirecting you back to the UC forum, but you are probably better off there asking about it :-/

I'd take the internet hype with a pinch of salt to be honest. There was a 2007 study which showed 67% of patients with active Crohn's got into remission, but it was a very small sample size and there hasn't been any follow-up study since, except this one with kids with Crohn's:

www.ncbi.nlm.nih.gov/pubmed/23188075

It's apparently notoriously difficult getting a GI to agree to prescribe LDN, but there are ways round that. I dunno offhand to go about it, but ask your GI first as he/she might agree to it.

Good luck!
Posted 7/8/2013 12:28 AM (GMT 0)
Here are some threads from the Crohn's forum discussing LDN:

www.healingwell.com/community/default.aspx?f=17&m=2429828

www.healingwell.com/community/default.aspx?f=17&m=2270240
Posted 7/10/2013 3:07 AM (GMT 0)
My gastro is open to prescribing it but I got it from another doctor(not gastro) that I'm seeing.

Having vivid dreams is the only side effect I experienced while on it, I temporarily stopped because I wanted to see what I'm responding to first then continue it later if i think that it's time to test it out.
Posted 7/11/2013 12:35 PM (GMT 0)
I've been taking LDN for Crohn's for 2 years now. Liquid: 5 ml at night. Very simple to take, affordable, seems very safe because its such a low dose.

What its done for me is take away the crohns related arthritis (knee / back / everywhere) pain that was nearly crippling me.

My main problem remains low energy. But at least I'm not in full body pain anymore. Probably the best $45 I spend each month. Much more effective than %95 of the Crohn's drugs I've been on. (asacol, pentasa etc - how can u even say they work? They had no effect)

Look up Dr. Jill Smith's Penn State Hershey studies for your Dr to view.

I take Flagyl for flares.

All the best.
Posted 7/12/2013 4:39 PM (GMT 0)
i've been on it for a few years and to be honest i don't know if it does much at all. i've flared several times while on it
Posted 7/12/2013 5:20 PM (GMT 0)
I, too, have taken LDN for awhile and I am not sure it has helped since I still flare once a year.
Posted 7/13/2013 1:54 AM (GMT 0)
I'm currently looking into this. I am quite impressed by all that it's supposed to help. Lessen and help crohns, MS, fibromyalgia, dry eyes, arthritis and more. If only? Regardless I would like to try it, but wanted some recent research or trials to print out to show my GI just incase he hasn't heard of it. I haven't been able to find anything recent and what there is, are very small trials with very few patients. I am a bit skeptical, yet I would like to try it and see for myself.
Posted 7/13/2013 10:18 AM (GMT 0)
LDN is great!

I have a ton of information about LDN. It has no side effects and it can treat many conditions. The FDA will never approve it for the numerous conditions because it's too cheap and isn't a money maker, like Humira.

My GI doctor refused to prescribe it, as most doctors know very little about the drug for any other condition besides addiction (that is what it was used for back in the 80's). Naturopathic doctors or Integrated Medicine dr's usually prescribe it. First I would read the numerous posts I have on my blog. I have a lot of helpful info there.. OR go to the LDN information sites that I have posted on the right hand column. I can't remember the name of the websites, but I know I have a few listed.

If you think you want to try it, I'd first ask your GI dr. It's worth a try. Print out the clinical studies for the dr. and any other info you feel would be helpful. If the GI doctor refuses to prescribe, I can help you find a LDN prescribing doctor in your area.

Good luck and mail me with any ?'s.

PS: NiceCupOfTea... you shouldn't speak for others.
Posted 7/17/2013 2:42 AM (GMT 0)
Just got my first shipment of LDN and starting my treatments tonight.
I know it will take perhaps 12wks to know for sure if its helping, but I am anxious.
I got mine from Riverpharmacy in 10days , so I was happy.



Diagnosed 1/8/13
Cycling Prednisone
Cycling Canasa supp.
4800mg asacol daily
Restricted Diet - no dairy.
Posted 7/17/2013 3:57 PM (GMT 0)
Search for posts from InSoFla...she has alot of info on this.
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