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New member wondering if others changed diet and saw improvement

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Crohn's Disease
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Posted 9/4/2013 9:40 PM (GMT 0)
Hello everyone, I am new to this forum i have had crohn's since 1990. just wondering if anyone had any luck with thier crohn's by changing food style or on certain food? any help would be great.

Post Edited By Moderator (Ides) : 9/4/2013 4:31:39 PM (GMT-6)

Posted 9/4/2013 10:36 PM (GMT 0)
Welcome to Healing Well, Casey! I edited your post only to add a subject line. It you don't like my title, you can change it by clicking on the little pencil in the upper right corner of your post.

When my Crohn's was at its worse, I could only eat soft foods and absolutely no fiber. However, medication has improved my Crohn's to the point I can eat m ost everything except Romaine lettuce.

What medications are you taking? Do you know where your CD is located - the terminal ileum, colon, both? Ever have surgery? All these things make a difference in how you tolerate foods.

Hopefully others will have more advice...
Posted 9/4/2013 11:38 PM (GMT 0)
Ides, thank you for your response. My CD in the large colon, had one surgery to repair a fistula back in Australia.
Medications:
Sulfasalazine, 4X2 DAILY. I should be starting the 6mp soon.

Thanks,
Posted 9/5/2013 3:23 PM (GMT 0)
Hi Casey, I've had CD for many years also located in my colon. If I have smaller meals throughout the day, I feel better.  Nausea is big problem for me, and if I over eat I really suffer.  I stay away from raw veggies, spicy foods, all type of nuts and pork (which I can't digest for some reason). 

I just started eating less gluten which seems to help.  Plenty of soups, soft foods and fruit smoothies in my blender. 

I was taking Lialda for years but just switched to Asacol 4 x a day.   Be well! 

Posted 9/5/2013 3:29 PM (GMT 0)
Yes. I have been on SCDiet for 8 months now and my Crohns in the TI is much better. Also I have many fistulae which have almost closed up on their own. (Bladder fistula was very painful but pretty much gone now. Pain free!)
Posted 9/5/2013 7:35 PM (GMT 0)
Hi Deakin, SC Diet for 8 months and you doing much better that sound great i hope you feel even better. Can you name some of the foods that really worked for you and the ones didn't work?

Thanks to all who responded!

GOD BLESS!!!!!
Posted 9/6/2013 2:46 AM (GMT 0)
Casey:
I was diagnosed in 1990 and first year started with bland and baked foods with little or no spice or seasoning. Slowly added to diet and was better in a year. Remission by 1995 and eat about anything I want. Med is Asacol tabs.
Jeff
Posted 9/6/2013 2:54 PM (GMT 0)
I went on the SCD diet in 2007 when diagnosed with CD in the colon. After 7 months following the diet to the letter, both of my two massive rectal fistulas were completely healed, and all my other symptoms from CD like mucus and blood in the BMs were completely gone. 

I am still follow the scd diet to this day and for the last 6 years I have been completely symptom free.  The only drugs I take are pentassa 1000mg 3Xday.

Posted 9/6/2013 5:16 PM (GMT 0)
Take lactose free milk (i.e. Lactaid) in case you,like most of us Crohn's patients, are lactose intolerant. I was diagnosed with Crohn's (known as Ileitis in 1953) at the age of 13. I am 71 now. Institutional milk for 8 years,public school and college,caused alot of horror days. Sure wish Lactaid was available in those days!!
Posted 9/6/2013 6:41 PM (GMT 0)
Im a new member also.  I have had Crohn's for over 30 years.  YES your diet has everything to do with how you feel. Like others, soft foods, no fiber, no raw vegies, no red meat and not lettece for me at all.  But I am now on Humira and I'm doing very well. Hopefully I have found something that works very well for me.  But the possible side effects are scarey..  Anyone else on Humira?

tongue  

Posted 9/6/2013 6:42 PM (GMT 0)
Hey Casey - check out the book The Makers Diet by Jordin S Rubin... I have a young son who was just diagnosed and this book has been a life changer. We switched to an all organic diet, give Garden of Life probiotics every morning and include more exercise into our son's daily routine and have seen a huge improvement!! His gastroenterologist called his symptoms "boring" at his last visit haha - We'll take it! I know every case is different though, hope this helps some.
Posted 9/6/2013 6:47 PM (GMT 0)
I also have read "The Makers Diet" and it is very helpful. Especially that the author has Crohns. Pork is one big no no for me. Its always been trail and air seeing everyone is different. And the SILK milks is Awesome!
Posted 9/10/2013 6:48 PM (GMT 0)
After reading the Makers Diet, Wheat Belly's, and Raw (I am sure there were some other ones in there too) I tried going gluten free for my daughter - 3 months, no change, Dairy free helped immensely, but we figured that out on the way to being diagnosed. Reducing sugar has been the only thing that has seemed to help from a diet perspective, but now just coming to the year mark of diagnosis and still trying to manage the flares and meds, I am sure trying these things out in the next few years might come with better results.

The best suggestion is a food journal. It helps me see patterns. One thing EVERYONE seems to have with this disease is something that works well for one, does nothing for another. The food journal helps me determine what does work for my daughter and what needs to be eliminated.

Glad to hear the probiotic worked for you mrsv2 - 6 months and not a change. We just finally gave up. It also may have to do with the issue of location of crohn's too - seems I can't get anything to help the esophagus issues.
Posted 9/11/2013 12:43 AM (GMT 0)
I had a real problem with Dairy too. But I follow the SCDiet.

Basically all I eat is ground almonds, eggs, honey, meat, cheddar cheeze, veggies(cooked), fruit, and homemade yogurt. 100% grape juice and weak tea. (Lactose free milk)

I'm also in the process of getting a prescription for Medical M. From a Naturopath.
Posted 9/11/2013 4:29 PM (GMT 0)
Hi Deakin,
I am sure you know lactose free milk is not SCD, but in case you did not, thought I would point this out
David
Posted 9/12/2013 9:44 PM (GMT 0)
New member wondering if others changed diet and saw improvement

The short answer is definitely YES, but let me elaborate. I don't take any meds. For me diet and supplements are key to maintaining remission but I don't believe that diet alone can end a flare once it has started.

I haven't been in a full-blown flare in over 3 years but sometimes I might eat a food that begins to trigger symptoms. Then I immediately stop eating it. There is no doubt in my mind that if I continued to eat my individual “poison” then I would be in a full-blown flare and there is no way I ever want to experience that again.

Probiotics and powdered psyllium seed seem to stop the onset of flare symptoms for me. Others may need meds such as Rowasa enemas. The bottom line is to end the flare. But of course that only works if I also avoid the food trigger that caused the symptoms in the first place.
Posted 9/13/2013 5:49 PM (GMT 0)
Ditto regarding the recommendation for the Maker's Diet. I can't afford to purchase the products, but have found excellent probiotics and supplements from reputable companies. I started making my own probiotic yogurt years ago, use probiotic capsules, because I hate swallowing pills.
Posted 9/13/2013 6:30 PM (GMT 0)
I just use lactose free milk for tea only. Once a day. Maybe twice on the weekends.

In chapter 9 on page 63 it states that you can use small amounts of lactose free milk for tea or coffee.

My wife is more worried a out the mixed bean she buys for chilly. Do you make any chilly Dave?
Posted 10/13/2013 6:10 PM (GMT 0)
Hello,

There are many book from the Maker's diet, one book to lose weight. Do you mean "The Maker's Diet: The 40 day health experience that will change your life forever"?
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