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Crohns Disease and Ulcerative Colitis with back pain, abdominal seizures, and dermatitis supremativa
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Crohn's Disease
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Indian ginger
New Member
Joined : Sep 2013
Posts : 1
Posted 9/18/2013 4:48 AM (GMT 0)
I'm thirty nine. I was diagnosed with crohns at age eleven. I have one of those special cases where it morphed into also having uc and later developing diverticulitis along with crohns. For years now I've had seizures in my abdominal area, horrible lower back spasms, and a skin condition in the groin area causing painful abscesses. I've tried everything to alleviate the later symptoms with no avail. It has come to the point that I'm almost ashamed for my husband to see me naked with the lights on. I feel like I'm all alone here, does anyone else share these symptoms, or can anyone relate? I'm just so disgusted that an illness that robbed me of a normal childhood, is now trying to rob me of the happy place that took me 28 years to achieve. At wits end! Help!!!
kazbern
Veteran Member
Joined : May 2010
Posts : 8384
Posted 9/18/2013 6:05 PM (GMT 0)
Hi Indian ginger. Welcome to the forum. I'm sorry you're struggling with Crohn's. What are you doing to treat your illness at this point?
girlzilla
Regular Member
Joined : Oct 2010
Posts : 201
Posted 9/19/2013 2:01 AM (GMT 0)
Unfortunately, crohns+colitis is somewhat rare as far as I know, so I am not familiar at all with the treatments, etc..
I'm considered Crohns-colitis, I believe, but I have not been diagnosed with both at this time. I have a case of indeterminate colitis, really, where they can't decide what's what.
I would also love to know what treatment plan you're on, as per kazbern's question. Also, are you seeing a dermatologist for the skin condition? And also, have you had physical therapy for the back spasms?
And finally, have you recently been tested for a UTI or kidney issues?
JaSanne
Veteran Member
Joined : Oct 2006
Posts : 2086
Posted 9/19/2013 1:32 PM (GMT 0)
Hi and welcome,
Has your dr. ruled out these abscesses being fistulas? That's what it makes me think of since it's in your groin area, but hopefully not. There are some pretty serious extra-intestinal skin manifestations that some patients have, but even non-IBD patients can have boils and such, especially when they're physically compromised from other ailments.
I have to take a muscle relaxer med 4 times a day due to a spinal chord injury, rotator cuff injuries, arthritis, and scoliosis so I know about
those spasms. So I can relate. -Joy
gee2
New Member
Joined : Oct 2013
Posts : 3
Posted 10/8/2013 11:56 AM (GMT 0)
@welcome..I'm new also. I'm just beginning to figure out thee is a connection with hidraenitus suppertiva an chrones. The abscesses in my groin area seem to respond to the hormones estracee. They are better..but not gone
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