Please someone relate!! Need answers!!!

Hi All, I'm new to this site and have found it so comforting at times that I'm not the only one with CD!! I'm going through a rough time lately and would like to see if any feedback could determine whats wrong, past week or so I have eaten food and thrown it straight back up, I've completely lost my appetite and i dont know if this is because I am scared it will leave me in chronic pain. My pains are really bad and not only do I have an imflammed bowel most of the time, but now I get pains in my upper abdomen too! The moment i start to eat food i get pain when the foods go down into my stomach! I'm not on medication at the moment but am waiting for my azathropine, last time i was on this it killed my white blood cells and I felt even worse!the pain even wakes me up at night! I have trouble going to the toilet and when i do its not diahorrea its solid, any help would be appreciated! Family are at receiving end of my moods! Becoming depressed! X

Thank you! Just wondered of anyone else felt the same as me and what they think it could be, I have a feeling it may be a stricture somewhere or a blockage which isn't letting food go down without me bringing it back up! Doctors in the U.K. Dont seem to be that good! I think i need an operation to cut away any bad before i start to feel better :-( x

Sorry that you are suffering. When anything can't stay in my stomach, I drink Ensure and soup. Just eat small pieces and bites every now and then. My GI told me when I lose appetite to keep a schedule ad eat every day at the same time. I followed this plan religiously and it worked. Agree w Crohnsmommy. Call your GI. Maybe he has other suggestions until Aza kicks in. IMO, a short taper of pred wouldn't be a problem. Are you having regular blood test to test for Aza's effects? May be you need to adjust the dose.
As for your constipation, do you have any narrowing in the rectum? Take laxatives to make things easier.
Hope you feel better soon :) Keep us posted.

Hi Sorry you are having a hard time of this hope you get some relief soon. I had similar issues last year and had 4 strictures in the small bowel it got to the stage where I stopped eating all together as I knew I would be in pain if I did. I went on to pred for 8 weeks which help alot but was on humira aswell which was doing nothing for my symptoms I think my crohns was to far gone for meds by then. A short term burst of pred may help. x

Kelly,

If you're having the urge to throw up after eating, I might suspect a minor or even major blockage. I agree that you should resort to a liquid diet for awhile, like soups and ensure.

You really need to get to your GI and push for some diagnostics. You might need a colonoscopy or SBFT. An MRE will work very well too. You really need to know what's going on in there, so you can address the problem with a treatment plan.

I know that some go without maintenance meds, but unfortunately for most, it gives the disease the opportunity to slowly do damage, that if let go too long will result in serious damage.

Good luck, let us know what happens at your next appt.

Tom.

Kellyga said...
Hi All, I'm new to this site and have found it so comforting at times that I'm not the only one with CD!! I'm going through a rough time lately and would like to see if any feedback could determine whats wrong, past week or so I have eaten food and thrown it straight back up, I've completely lost my appetite and i dont know if this is because I am scared it will leave me in chronic pain. My pains are really bad and not only do I have an imflammed bowel most of the time, but now I get pains in my upper abdomen too! The moment i start to eat food i get pain when the foods go down into my stomach! I'm not on medication at the moment but am waiting for my azathropine, last time i was on this it killed my white blood cells and I felt even worse!the pain even wakes me up at night! I have trouble going to the toilet and when i do its not diahorrea its solid, any help would be appreciated! Family are at receiving end of my moods! Becoming depressed! X

Kellyga, I don't quite know to respond to you in a way that I promise will help. Well I guess some will appreciate it and some won't. There is a drug that will nearly stop a Chron’s bout in its tracks. You need to discuss this with your Doctor. (I am assuming you are 18. if not please bring your Parent, Parents, Guardian et al. into this conversation. I was struck with, and diagnosed almost simultaneously with Chron’s. A huge fistula created a large abscess near my rectum. Very near. It was a Friday and it happened all at once. I was struck with cramps; I had to go NOW, explosive results. I had a 6 hour drive home. By the time I was home I was nearly dead. The fistula was feeding a "horseshoe abbess" completely surrounding my rectal area. The abscess was so hot you could feel the heat. By Monday I was in the hospital. That was 2004. After 12 more surgeries the fistula was stopped. That brings us to 2008. Since 2008 I have applied 3 Vicoden a day along with a lot of other intestinal suppressants. The Chron’s causes my intake to race through my body. The "opiate ingredient" in many drugs works the same. It is absorbed through the intestinal wall. It takes a 10/325 Vicoden and 45 min to an hour. Vicoden makes you feel vertigo for a couple of weeks. I guess that's what persons call a "high". I think it sucked! Anyway, that went away and my motor skills returned. That dosage and usage has never changed. If you are a person who has an addictive personality, don't try it. People die from Vicoden addiction and it doesn't take long. I never drive until 6 hours after I take a Vicoden. I may sound like Gramp's here but if you blow it and take more than one at a time ... ever, you just blew your best get out of Chron's for 6 hours card. I have had no surgeries and mild to harsh symptoms every day. I use that as a sign for when to start dosing. The slightest hint and I hit it. 1 pill every 6hrs. 10 years now. Good luck to you and I hope you find a doc who trusts you and you can trust yourself. Again, I see why addiction happens. In a few weeks you feel no vertigo effect. If that is what you are looking for, expect loss of everything you own including your life. Follow the plan and if it works for you there ya go. No huge Chron's issue!

 Bob

 

The vomiting is what caused at first a difficult to diagnose with our general doctor. He thought the throwing up along with her diarrhoea meant she ate something wrong or had a stomach virus that just kept coming back. It turns out my daughter has crohns in her esophagus along with her colon. He even was concerned she was bulimic! The vomiting is something she deals with off & on depending on how bad she feels. Prevacid has helped her deal with the vomiting issue, but it hasn't completely gone away.

Hang in there, it will get better!