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"Get well soon!"

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Crohn's Disease
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Posted 1/6/2014 6:35 AM (GMT 0)
Do phrases like that or "Get better soon" bother anyone else? I know it's irrational and I know people mean well when they say them, but I want to say, "I have a chronic disease! There is NO cure! I am going to be sick for the rest of my life!" rolleyes

Of course, I don't say any of those things; I just smile and thank them. I know they're just trying to be nice and don't know what else to say. I'm normally quite ok with the sentiments, but for some reason lately those kinds of phrases just rub me the wrong way! shocked
Posted 1/6/2014 11:47 AM (GMT 0)
My favorite is "Keep well." Ugghhhh.
Posted 1/6/2014 1:00 PM (GMT 0)
It's a cyclical thing for me...sometimes they really irk me (and I just live with it like you said), sometimes it doesn't bother me at all. I have quite a few people in my life now that understand the illness as best as they can and they still say it...out of not knowing what else to say. Mostly they say "I hope you feel better soon" which works for me.
Posted 1/6/2014 2:21 PM (GMT 0)
Those are the sort of stock phrases I associate with cards sent to somebody who's just had an operation. I've never had anyone say them to me in real life.

But I think I would prefer cliches to nothing at all. When I was in hospital, none of my family sent me get well cards, or anything. If my parents hadn't visited, I would have been entirely on my own, without any visible sign of having any family.

Absolutely nobody apart from parents (and some more caring spouses) really cares if you are sick. Well, that's been my experience.
Posted 1/6/2014 2:46 PM (GMT 0)
Lighten up, We know the general public is clueless when it comes to this disease. It's the thought or the intention they want to pass on. I'm not the most eloquent writer myself. Finding the right words is a challenge for me also.
That said....
May your symptoms lessen and your spirit rise.
Posted 1/6/2014 4:43 PM (GMT 0)
Like I said in my original post, I know that I'm being irrational about it. I'm sure it has something to do with the fact that I feel guilty for being sick because of the strain it puts on my husband in taking care of our 5 month old baby while I'm in the hospital, or that I can't pull my fair share of the weight. So when someone says, "I hope you get better soon!" it just reminds me that while I may get into remission eventually, I won't ever be "better" in never having to do treatments or watch what I eat, etc.

lol, I know, I'm being sensitive and silly. I am extremely grateful for everyone who cares and asks how I'm doing and wants me to feel better. It's touching, and I appreciate them. I just wish I wasn't sick. I know, we all do. I'm just being whiny - I am back in the hospital and my 5 mo has a viral infection with a fever over 103 and I can't be there to hold her and comfort her. :(
Posted 1/6/2014 4:59 PM (GMT 0)
When I tell someone of my fellow IBDers to get better soon, I am aware that we have a chronic disease. What I mean with this is: I hope you gain remission :-)

However, I don't like it when I'm at the doctors and the nurse asks me: How are you? I just think: If I was well I wouldn't be here...
Posted 1/6/2014 5:32 PM (GMT 0)
Hey scifi...I've probably written that to you before....I know it's a chronic disease, I just more am sending wishes for you to stabilize. How are you doing? Any new info from the docs/hospital??
Posted 1/6/2014 6:53 PM (GMT 0)
If I say get better soon to someone with a chronic illness I too mean it as in' get better' than they are at that time x
Posted 1/6/2014 10:02 PM (GMT 0)
Oh, I know guys, I really do. And I usually take it in a positive way. I am not as cranky as this post has made me out to sound! It's just been a rough few months - 4 hospitalizations since the end of Oct, all for different things, and then today I just tested positive for c. diff again. So please ignore me! I promise to be better. :)
Posted 1/6/2014 10:37 PM (GMT 0)
Meh, vent about it if it really bothers you. I don't mind >_>
Posted 1/7/2014 12:49 AM (GMT 0)
Sci-fi, sorry about the return of c-diff. I am completly miserable with this c-diff. I am so over it! I suggest you insist your Dr do fecal therapy rather than more antibiotics. Since your c-diff keeps returning, you should be eligible for FT. I am going to see a Dr that specializes in it at the end of this month. I plan on begging him for it. I can't handle this Vancomycin. It is making me flare unbearably. I am keeping you in my prayers! Please do the same for me!
Posted 1/7/2014 1:26 AM (GMT 0)
Aww scifigal...c.diff again?? Is that what they think is causing the heart rate problems too. I'm so sorry to hear it!!!!
Posted 1/7/2014 2:13 AM (GMT 0)
@pmedic - that's a good idea. I'd brought it up with my GI in Utah, but that was before and I only had had it twice. Now that this is the 5th time, we'll see. But I thought the FDA had put a hold on doing them? And I will definitely keep you in my prayers! lol, and I hope you feel better soon. ;)

@gumby - they still aren't totally sure about the heart rate thing. They did an ultrasound of my heart. But I'm betting with the c. diff., the anemia, dehydration from D, prednisone, and having been septic less than a month ago that my body is just under a ton of strain, you know?
Posted 1/7/2014 2:15 PM (GMT 0)
I think it is fda approved for recurrent c-diff after failing antibiotics but I believe the Dr has the ultimate say-so depending on how sick you are. The Dr I will see at the end of the month is doing trials to assess the effectiveness of FT on uc patients but apparently does many on c-diff regularly.
What are they giving you for the crohns and c-diff while in the hospital?

Post Edited (pmedic) : 1/7/2014 8:13:16 AM (GMT-7)

Posted 1/7/2014 6:13 PM (GMT 0)
Flagyl for the c. diff., although last year it didn't work on the last round of c diff and I had to do vanco. But I haven't seen the GI yet to tell him that. 20mg pred for the CD. I can't get my Remi infusion (overdue two weeks) because the thrush is still active, so I'm taking diflucan for that.
Posted 1/14/2014 11:57 PM (GMT 0)
My husband totally doesn't understand or even try to understand my CD. He told his employer I had a terminal illness instead of a chronic illness. That was about 10 years ago - I guess they are still waiting for me to die!
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