HealingWell
Search Close Search
☰

So Worried

Support Forums
>
Crohn's Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 3/26/2014 3:20 PM (GMT 0)
My mom found out she has Crohn's not long ago and has gone through so many surgeries. She started getting the shots to get the Crohn's under control but it almost seems a little to late. She has another fistula and there is talk of her going through another surgery. She is back to being unable to eat or drink anything and she is not sure if she can take anymore. I live far away so I can't be there to support her in person but I do talk to her over the phone a lot and I find it taking a lot out of me because I don't have much I can tell her. Can she die from this? I feel like I'm almost at the end of my rope and I'm not even the one going through it. I've tried to find some support groups in my area so I could have more people to talk to but I haven't found any.
Posted 3/26/2014 6:15 PM (GMT 0)
I'm sorry to hear about your mom, and I'm sure it is very stressful for you too. I suggest that you go to the US Crohn's website at www.ccfa.org. You can get great info about Crohn's and there is also an online support network that you may find helpful. I hope your mom has a GI who is knowledgeable about Crohn's. If you have any specific questions that we can help with, let us know. I guess she can die from complications from Crohn's, but the statistics indicate that most people live normal lifespans. I hope that helps
Posted 3/26/2014 6:22 PM (GMT 0)
It helps a little, what diet information can you provide? I know genes can increase the risk of Crohn's is there anything I should be doing to lower my risk?
Posted 3/26/2014 9:05 PM (GMT 0)
Even though there is more risk for you to get crohns if your mom has it, the risk is still low. Both my mom and I have it, but there are no other family members that we know of with the disease. If you want to decrease your chances make sure your vitamin D level is in a higher range, (search the Vitamin D Council), take probiotics and try to avoid unnessesary antibiotics. Is your mom on TPN? Has she considered trying a liquid meal replacement such as Vivonex or Ensure?
Posted 3/26/2014 11:04 PM (GMT 0)
I will hopefully be finding out more tonight but last I heard yes she will be going back on the TPN. And unless anything changed she isn't able to drink anything at all.
Posted 3/26/2014 11:39 PM (GMT 0)
Poor lady, I hope thing turn around for her soon. Hugs to both of you!
Posted 3/27/2014 12:10 AM (GMT 0)
Just got a call from her, she had a really bad day. People at her work were making fun of her because of the smell (from blood and diarrhea). Any advice for her? Also she got her pick line in today.
Posted 3/27/2014 9:38 AM (GMT 0)
You can't die from Chrons/Colitis so don't worry. I was diagnosed 2 years ago and you have your ups and downs. When your feeling normal its like you don't have the disease at all, but when it comes back it really hits you... the goal is to get into remission and stay in remission as long as possible. She needs to take a quick acting steroid like prednisolone along with something more long term (steroids should only be taken for short bursts of time), its a shame people at her work were making fun of her, thats not funny at all and if that happened to my mum I'd be over to her work to have words with them....

wishing your mum well.
Posted 3/27/2014 11:33 AM (GMT 0)
She started getting some kind of shot not sure if its a steroid or not but it is suppose to settle the Crohn's and stop any more fistula but it doesn't seem to have time to work yet. Thank everyone for there stories and support it helps me to be able to tell her that she is not alone.
✚ New Topic ✚ Reply