humira

Hello,I have been on remicade for 6 years now and it is no longer working for me.My dr wants me to go on humira.Has anyone had bad experiences with this med? It sounds frightening.with the hair can fall out part especially.

I've been on Humira since February 12 and have not noticed anymore hair loss than usual so for me it's not affecting my hair so far (and hopefully never will).

I packed on some high quality multi vitamins while on Humira in the past and had minimal hair loss.
I'm not quite sure if it will help you too but Vitamin B9 folic acid(800mg) every other day definitely helped me.

The only thing I hated about Humira was the stinging pain that I was left with after takingeach shot.

Still remember taking in the loading doses(4 shots I think?)

Both of my thighs were hurting like a biznach.

Hi. I have been on Humira for 8 months. I had shoulder or a bit longer hair. My hair starting falling out and looked like dry hay. I tried every shampoo that was recommended. Nothing was working. I went about a month ago and got it cut short.. I really like the style and it blends in with the new hair coming back. My new hair that has grown back is real soft and a little curly.

For me no hair really fell out so to speak and it would have been the least of my problems. For a few of us the tiny side effects that are printed come true. It gave me Lupus, Psoriasis, Latent TB, Migraines, Liver Damage, Growth. It was a nightmare. I tolerated Remicade fine. They couldn't pay me a million dollars to take another biological. However, with that said, many take it with no side effects currently. Do some research and just weigh the benefits versus the risk. Make sure if you do take it that they monitor you very closely. My doctor didn't see me for over a year while on it and that was a huge mistake!

I was on Humira within months of being diagnosed with Crohn's.

At first it was ok. I would come and go from taking Humira as I would go into remission and would be fine for months on end.

Then eventually I started noticing roving, swollen lumps, first in my fingers, then in my hands, toes, knees, elbows. It kept getting worse and worse until I was missing work from the swelling, couldn't sleep because of the pain in whatever joint was swollen, and couldn't walk on some days.

I really felt like people around me thought I was crazy. My GP gave me T3s and they caused a weird burping symptom that was surprisingly painful in the diaphragm. My GI sent me to a rheumatist, who put me on celebrex while I thought about whether I wanted to try methotrexate. She said I had lupus markers and sent me for more tests. The celebrex didn't do anything.

Finally, my mom said that she'd noticed I had terrible (ruin your whole life in 20 minutes level) mood swings that corresponded to my Humira doses. I stopped taking the humira and the lupus markers, mood swings, and swelling completely disappeared. This all happened over the course of more than a year and led to a job loss. What was maybe most upsetting was that my mom had to figure it out, after two specialists couldn't see it and prescribed more meds to try to fix a major problem caused by the first one.

I still haven't found my magic cocktail, and usually get the moon face/moustache/fatigue/nausea or whatever any given drug threatens. Even so, Humira was the root of the second worst Crohn's story I have. I'm sure I'll get around to telling about the first, eventually.

I did notice minimal hair loss when I was on humira. that was the only side effect I recall. It did give me my life back tho. Complete remission. In the meantime i was busy screwing it up by going back to my old disastrous ways and at some point I had to stop the Humira due to an abscess. Surgery shortly there after. For the time I was on Humira I was grateful for the results.

pinkfroggie - Im right there with you! 20+ years and every meds they have thrown at me and I get the 1 in 5,000 will get purple spots and see flying monkeys - Remicade was my best year until medicine induced RA became a problem. Cimzia didn't work and cause a lot of constant body aches and now Humira, I'm waiting to see what kind of fun she'll bring to the party. I call the biologics the "wicked sisters" it's only been 10 infusions so far so I'll just keep praying that this sister wants to play nice. :)
Now if I could just regulate the constant/urgent/run faster than lightening or you ain't gonna make it D - I'd be happy as a clam -- almost