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Gumby - how are you now?

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Crohn's Disease
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Posted 6/16/2014 1:30 PM (GMT 0)
Haven't seen a post from you in a bit.  Was wondering if things are getting better on your eating more.  Hoping things have improved!!!
Posted 6/16/2014 2:19 PM (GMT 0)
Hi Habs,
Thanks for asking about me. Today is my first day back at work. I saw the surgeon last week and he didn't want to give me the cholestrymine. He told me to wait three months (!) to see how my own body does first. I have started Tums + Vitamin D. The calcium carbonate is supposed to help D, and I also am taking a couple of Metamucil pills per day. There are days when the D slows down and other really bad days. So hopefully I'm moving in the right direction. My hubby and I just tried to walk around town yesterday and I was surprised at how easily fatigued I still get. But hopefully I'm getting better. I have a big break from work in the middle of the day.....I am working part time so I can rest if needed. I'm eating better too. How is everything with you??
Posted 6/16/2014 3:49 PM (GMT 0)
Well glad to hear things seem to be moving in the right direction...and you sound like you are not pushing as much either.

I literally just took my last dose of prednisone for this round (started back before Easter).  I am noticing my joints are hurting a lot again--did not think the pred was helping, but in retrospect maybe it helped the joints some.  It definitely did nothing for my gut.  As soon as I stopped the antibiotics, I started feeling crummy again.  I get waves of heat when I eat or when I am really hungry, then right after I get headaches and I feel really lousy.  This is definitely making me have the antibiotic conversation with my GI more of a big deal.  I was spritely on the antibiotics and now I get exhausted easily and have gut pains...well I think I will push harder for a look into Xifaxin or some antibiotic that is more of a pinpoint to the gut.

Good luck back at work!!!

Posted 6/16/2014 3:50 PM (GMT 0)
Best wishes on your return to work, gumby! It does sound like if you're having days when the D slows down, things could be on the mend. Here's hoping the ratio of good to bad days changes in your favor soon. :)
Posted 6/16/2014 6:22 PM (GMT 0)
Thanks Habs, and Operatic! So far, so good. Let's see if I can last all day!

Habs, the hunger, temperature changes and headaches may be related to withdrawing from the Pred. I think Xiafan may be a very good idea for you.
Posted 6/16/2014 8:38 PM (GMT 0)
I can't believe you're back to work already!! The D will slow down, it just takes time. I have actually been having some formed stools the last few days (and then tons of D for the rest of the day), so I am hoping this is a good sign and things will continue to firm up. Good Luck!!
Posted 6/16/2014 8:39 PM (GMT 0)
OH, and you may need to ask you GI about the cholestrymine, that's who prescribed it to me.
Posted 6/16/2014 9:48 PM (GMT 0)
Thanks Myrne,
Tomorrow, it will be a month since my surgery. Prior to getting sick, I was working two jobs and just before surgery I quit one of them. So for the rest of the summer, I am only going to be working about 25 hours a week, which hopefully will be manageable. I'm glad to hear you are doing a little better. I will call my GI about the cholestrymine if I don't get better in a couple of weeks....maybe the surgeon is right and I won't need it. Thanks for your good wishes!
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