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Sick of being sick........Trying the Specific Carbohydrate Diet??

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Crohn's Disease
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Posted 7/2/2014 12:08 PM (GMT 0)
My daughter was diagnosed with Crohns Disease ten years ago. Fortunately we kept the disease in remission for seven years. about a year ago she had a terrible flare and honestly she hasn't had an easy time since. Hospitalized twice. Three abscesses in abdomen, which thru TPN finally healed up, only to find a small bowel obstruction as our next hurdle. For the first seven years she used Asacol and Lialda. After this bout her GI switched her to Pentasa. I swear that has something to do with her never feeling back to normal. Been off and on Steroids over the year. Just started Remicade in February. STILL not back to normal. I have tried everything, juicing wheatgrass, eliminating processed foods, and now I am giving the SCD a chance. Some days I could just cry. She's a beautiful vibrant young woman, who is being drug down by this dreadful disease. I just don't know where to turn next. Has anyone out there had success with the SCD?
Posted 7/2/2014 12:13 PM (GMT 0)
SCD should be an interesting experiment for you. I hope your daughter can comply with the restrictions.

How about combination therapy that uses both remi and imuran?
Posted 7/3/2014 2:41 AM (GMT 0)
Hope your daughter is able to bring herself into remission.
Posted 7/3/2014 11:11 AM (GMT 0)
Hi Beachbum
I have been doing SCD for 5 years now. I went from being sick for months in a row, bedridden, tons of ulcers in the small bowel, to 100% clear pillcam from SCD. It works. It is not easy to get right. There is lots to learn. But it is so much better than scary drugs and surgery. 100% of all studies , although the studies are small show SCD either causes improvement or 100 % remission. However even though there is a list of food to eat and not eat it is more than that. You will have to figure out what works. For me it is low carb, high protein, no fried food, small amount of nut butters,...
Please join the yahoo scd group and start Healing with food
Good luck and hope you find your healing path
Dave
Posted 7/3/2014 2:22 PM (GMT 0)
I'm sorry your daughter is going through such a horrible time. I hope the SCD helps her. I did the diet about 11 years ago. It helped me a lot. Within the first few days my bloating and gas stopped, by one week I had stopped bleeding and in the second week the diarrhea stopped. I truly believe it helped me avoid surgery. I only stayed on it strictly for a short time, but ever since then I have followed the main premises of it- avoiding whole grains and refined sugars. I know everyone is different and it hasn't worked for some, but it was GREAT for me and I would say very successful.

Either way, it can't hurt to try it. I hope your daughter does well on it and gets some much needed relief!
Posted 7/3/2014 2:51 PM (GMT 0)
I was diaganosed in 2007 with CD in the colon after having two massive rectal fistulas. GI said the only way to heal these fistulas was remicade.  I refused to compromise my immune system, so I researched and I decided to try the SCD diet.  After 5 months of fanatical 100% dedication to the diet, both fistulas were healed up, and all other symptoms like muscus and blood in stools were gone.  The only drug I took was pentassa(which I still take).  That was 7 years ago and I have not had a flare or symptom since then and I still follow the SCD diet.

The secret to success with this diet is 100% fanatical dedication.  If you pick and choose parts of the diet to follow and not to follow,,,you are wasting your time, and this diet WILL NOT WORK. You have to do it all or none for you to see success.  Also it is not an overnight success.  It takes 2 or 3 months before you start to see results.

The other secret to this diet is eating homemade yogurt that has been fermented for 24 hrs.  Store bought yogurt WILL NOT WORK.  Store bought yogurt has sugar added and is not fermented long enough to eliminate the lactose.  Homemade yogurt is a necesity for success with this diet.

I suggest you read the book "breaking the vicious cycle"  which goes into detail on this diet and how a woman cured her daughter with this diet.  

Posted 7/3/2014 3:39 PM (GMT 0)
Hi my son was diagnosed with crohns 4 years ago he is 14 now and having a second flare up, please can you tell me more about the SCD diet I am at my wits end and I will try anything if it will help him . Thanks
Posted 7/3/2014 6:04 PM (GMT 0)
huni....read the book "breaking the vicious cycle"  It will tell you everything you need to know about the SCD diet.

 

Posted 7/3/2014 9:42 PM (GMT 0)
Huni the book will tell you some including why you should do it. Join the SCD group on yahoo for how to do this diet successfully
Healing thoughts
Dave
Posted 7/4/2014 4:28 PM (GMT 0)
The diet does help. But there is still food that will hurt you in that book.

For instance steak, squash, asparagus, peanuts, etc. These foods hurt me the most by causing strictures or partial obstructions or just severe pain. Make sure to cook the hard veggies well.

The book is great. I did read somewhere in there that you can have a few diet pops a week. But I wouldn't recommend it. I had a pretty severe reaction to aspertane. I don't think these chemicals were around when the book was written.
Posted 7/5/2014 2:49 AM (GMT 0)
Its worth a shot, It's not a cure all but like everything else you won't know if it works for you till you try it. Everyone is different. It works for some and for others does nothing or makes them worse
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