New to site

hi!

i just signed up for this site today also, after lurking for quite some time.

i have been DXd for about 5 years but have had symptoms for at least a decade or two.

what drugs are you on? i am on remicade now but i have built antibodies, and the flares i get as the treatment wears off are absolutely fatiguing. the straining on BMs or vomiting really wears out my body. when i am in remission, i find yoga and light exercise really help keep my body feeling stronger and like i have more control over it.

one thing that absolutely helped my energy levels during the day, though, was to start having smoothies or juicing for breakfast.

my smoothies typically consist of almond milk, a banana, peanut butter, ginger root, coconut oil, honey, a touch of sea salt, and chia seeds (and sometimes fruit but depends how my tummy is feeling). also, maybe some grass-fed protein powder to give me extra nutrients (i have trouble gaining and keeping weight on)

adding the chia seeds seemed to have a noticeable effect on extra energy.

i also juice fruits and veggies for bfast too. even though there is no real "solid" food there, i feel satiated and have a high energy level.

a juicer is kinda expensive and hardcore for a dorm room, but one of those magic bullet blenders might be perfect for dorm living.

i also find that marijuana really helps me relax and "reset" after a long day (but smoking it all day gets me pretty tired by the end of the day).

Actually kazbern i forgot to list the codeine and phenergan are as needed. As is the donnatal, zofran, and bentyl although i rarely take the bentyl because is does nothing for my stomach

Hi dodgr....welcome. I guess my first question is are you getting your iron and B12 levels checked regularly? Keep an eye out for that nasty anemia just in case.
Other than that...my suggestions for dealing with the "always tired" feeling are: nap when you need it!, spread food out through the day (that is my biggest reliever), light exercise actually energizes me (especially stretching exercises). I am an overly prepared type person---my husband thinks I over plan, but having things organized lets me rest more. I also found I do things in spurts and make myself rest between....I do housecleaning on commercial breaks of NCIS that way I make myself sit for a while then do some work, then rest again.
My best advice is take advantage of the times your feel really well...but don't over do it and pay for it later.