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Crohn's Disease
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Posted 7/22/2014 11:05 AM (GMT 0)
I am currently on Humira and Imuran and my life is more than great these months.Last year was a nightmare with syrgeries (sorry if i have mistakes im a non native English speaker) untill i got diagnosed and treated properly.I no longer have abscesess and fistules and i gained weight and 5 sm. and i feel free since 8 months.But there is only one problem...I have sudden mood changes i haven't expirienced before.I'm 14 and everyone tells me it's puberty,but no!I feel happy at times like i could do anything but then from nothing i feel sad.I feel like i don't do anything and no one cares .I get nervous and do unnecesery drama scenes and then i question myself why did i did it...And my parents allways contact my desiese with everything.If i feel hot or i have a rash they think it's an effects from my desiese and treat me like im a invalid.And i feel angry and it's just really strange.I wanted to ask is there some side effect of something? eyes

Post Edited (texikka) : 7/22/2014 5:08:52 AM (GMT-6)

Posted 7/22/2014 5:48 PM (GMT 0)
Texikka, are you menstruating regularly? It might be helpful for you to chart your menstrual cycles. Make a mark on your calendar each month on the first day that you bleed. And keep a journal of your moods. I'll be that you will find your moody days happen at the same time each month.

It is also worth thinking about how much sleep you're getting. Teenagers need a lot of sleep - maybe even more than little children! If you are not getting enough sleep then you will be feeling sad, or angry or unable to control your emotions more often.

I understand that you are tired of your parents treating you like an invalid. I'm sure they experienced your illness with a lot of anxiety and fear and worry, and they are probably still worried. This is a good opportunity for you to share with them how good you feel, and how glad you are that you are taking meds that help so much. Even so, they will worry - that is what parents do. {{{{HUGS}}}}. Talking about their worries with a friend or even here on the forum might help them a lot.
Posted 7/24/2014 6:55 PM (GMT 0)
Hello Kazbern,thank you for the nice words :),but i still DON'T have a period.I have white fluyid and i went to a doctor,he told me that it's normal and my period will come in about a year.That's why i was wondering about my mood changes.My parents are not quite like the ones in the movies...My dad is quite grumpy and always works and my mom has a brain desiese :( .She's not crazy,but it's hard talking to her sometimes.They don't know im on the forum.But i don't want everything to sound all sad!My dad is actually funny at times and my bro is my best friend.And i have another problem.I'm 14 but im tall 1,44 sm. and weight about 28 kg. .That's really small.I'm gaining weight but i'm nowhere near my friends.I feel like they are giants when i'm around.How do i handle this?I've asked everyone i know and they are all like "don't look at others you are fine" but i know what the truth is im small and i feel small.
Posted 7/24/2014 7:05 PM (GMT 0)
Well, now that you are being treated effectively for your Crohn's, you will probably grow a lot. I think your DR is right - given how small you are you have a way to go before you menstruate.

Are your parents small people? I am a tall gal and I can't imagine being small but I have a lot of small friends and they are just fine. I'm 175 cm and 68 kg.

You can still chart your moods even if you aren't menstruating. I know with my daughters they started getting moody long before they actually got their period. Make up a code for your moods and write them on the calendar so you can start looking for a pattern. I'll bet you find one!

And you might want to ask your mom when she's getting her period, too. Women who live together cycle together, so she might be getting moody right at the same time you are. Isn't that fun!
Posted 7/24/2014 9:43 PM (GMT 0)
i am currently on remicade but have built antobodies to it so i have started flaring about 4 weeks in.

so for my first 4 weeks, im my normal, happy, energetic, joking self. then, when the flare starts up, its like my body and mind start to shut down. i become more withdrawn, quiet, anxious and depressed (not to mention fatigued and tired).

crohns definitely affects your mood and personality. sometimes, in a flare, it can put me in a really dark place. its difficult on the people around you but you really have to open a dialog with them and try to explain how crohns affects your moods. they will not be able to fully understand, but having the talk, and maybe showing them some forums where people are posting about having the same emotional difficulties as you will maybe help them be a bit more accepting of what you are going through. i also start to feel guilty for putting my gf through my emotional states.

its a never ending cycle.
Posted 7/25/2014 3:50 AM (GMT 0)
While I don't know of Imuran or Humira specifically causing mood changes, I wouldn't doubt it if somebody told me they do. And I think you should take these mood changes seriously if you are concerned. Sure, teenagers have mood swings, but if it's enough that you yourself notice it, perhaps it is abnormal. How dark are these feelings getting?
Posted 7/25/2014 9:34 AM (GMT 0)
Well i wouldn't say dark,but just sad and depressing sometimes.I think i can controll when i become more angry about something.I asked my GI about these moods and she sayd that it's normal for my age.I asked her for a psycologist just so i could be more confident about what's happening,but she told me i don't need one.But i went to a psychologist!And nothing happened...We didn't even talk about my problem.....
Posted 7/25/2014 10:53 PM (GMT 0)
I am small too - 152 cm and I am 27 years old. :) Some people are just small! I enjoy it...I never had to worry about being taller than the boys I dated. ;)
Posted 7/27/2014 11:07 AM (GMT 0)
I have another major problem my parents treat me like a 8 year old only because i look like one.They even told me that.It's really hard for me living like this.Imagine being 14 years old and be treated like a 8 year old...It's just not right!All i want is these 4 years to fly faster so i could become an adult and do stuff on my own.I don't feel like i have controll over my own being.I can't "go there" or "do that" i can't go outside alone because im small and something can crush me or someone will do something to me.Or when we go on a sea vacation i can't go in the water really deep or even further than the coast -_- and many other sypid but important things.I feel like in a cage and my parents can't understand...I don't know how long i can keep it up.It's been like this since i was 10.But i can't pretend anymore!I can't do normal kids stuff !And i feel awfull :( my parents don't even let me go on a water slide and they don't let me swim because i can drown.
Posted 7/27/2014 1:55 PM (GMT 0)
Do you know how to swim? If not,take swim lessons. sign up for lifeguard training. In our community pools, kids as young as 5 can go down the slide if they demonstrate adequate skills in deep water.
Posted 7/31/2014 7:24 PM (GMT 0)
Yes i do know how to swim.
Posted 7/31/2014 7:26 PM (GMT 0)
So go sign up for lifeguard training.
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