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Steps when getting diagnosed?? Might have it?? HELP?

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Crohn's Disease
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Posted 8/4/2014 2:47 AM (GMT 0)
ive had pain for about 2 years ive done every test i could think of! I eventualaly got my galbladder taken out in Feb. 2014 thinking that was my problem. Still had lots of pain afterwards! Had a colonoscopy and endoscopy about 1 month ago, and everything looked normal except alittle inflammtion in my terminal ileum. My blood test said i have a starch malabsorption and i have to go on a starch free diet. normal test 5-7 ,mine were below 1! Ive heard docs talk about chrons for awhile now! im 15! ANy help on if this malabsorption is a step of getting diagnosed!

Constipation
diahhrea
using the bathroom after every meal usally ( pain in middle abdomen )
always using the bathroom in public
gained lots of anxiety
nausea persistantly
hurts to touch stomach sometimes
crampy/stabbing pain
Posted 8/4/2014 2:09 PM (GMT 0)
dancergirl, you've started several threads with the same question. Can you please stay on one thread and stop initiating new ones with the same information?

I did a little googling and I found this article you might find helpful: http://www.merckmanuals.com/professional/gastrointestinal_disorders/malabsorption_syndromes/carbohydrate_intolerance.html

I recommend you talk to your parents and your DR about what is going on. Is your starch problem a congenital one (something you were born with) or is it something that has come up because of injury to the small bowel, as might be caused by Crohn's, for example?

Meanwhile, you can eliminate or reduce starches in your diet and hopefully feel better.
Posted 8/4/2014 4:15 PM (GMT 0)
This could be a lot of things, so I wouldn't assume it's Crohn's. As kazbern said, you (and your parents) should continue to talk with your doctor about your symptoms as time goes on and continue to have tests run.

A lot of your symptoms are common with IBS (the anxiety often a big part of GI issues).

Things like celiac (gluten intolerance) can cause inflammation in the terminal ileum. If you haven't been tested for that yet, you should.

In the meantime, cutting out carbs sounds like a good start. I would also suggest you keep a food and symptom journal where you write down everything you eat each day and how you feel. This is hard to do, but it may help you pinpoint if certain foods are causing you issues.
Posted 8/11/2014 6:14 AM (GMT 0)
sorry for so mamy threads it keeps saying my other ones somehow are getting deleted, my laptop is messing up! I apologize! They said i did not have celiac , 10% positive, test results were normal! & didnt say how i got a starch defiancy just told me to stop eating as much! Im totally confused were they come up with these things!
Posted 8/11/2014 5:17 PM (GMT 0)
Sorry you're having computer problems on top of everything else. My Firefox Adblock causes some things to not show up here.

Your starch malabsorption may very well cause similar GI symptoms to Crohn's; I don't know. Your GI should have given you detailed dietary information to treat it. If you go through a diet change and it doesn't help, then you need to keep looking.

Try not to get too frustrated because it can take time to figure out what's going on. As I've said, it took me from around 11-12 years of age when symptoms started until age 36 to get properly diagnosed. It's not always easy to diagnose.
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