Venting about another drug reaction

First post here, lurked for a while.

Anyway, I've been diagnosed for 16 years. Mercaptopurine stopped working for me, had anaphylaxis shock reaction to Remicaid and Humira, Cimzia stopped working, Tysabri shut down my respiratory system to a point where my extremities starting turning blue and so I've been on and off steroids a lot. I've just found out that a few odd problems I've been having (dry skin, rashes, sores and hives) are likely caused by Entyvio. I only found that out though because I've got a bizarre and horrific inflammation in my right eye caused by hypersensitivity. My eye is currently 125% of its size, abscessed, painful and I'm down to about 33-40% vision in it for the last 8 days. Treatments are taking care of the pain but I'm not seeing visual improvement yet.

I know I have no room to complain because, while I have rheumatoid arthritis, graves and stage 2 kidney disease with my Crohn's, I've avoided the colostomy surgery thus far and long-term hospitalizations thus far. I just got my hopes up again and paid the price for it.

So I'm going back on entocort, sulfazalazine and hyoscamine. It worked well before and I'm hoping so again.

Sorry for venting but thanks for the opportunity. Good luck to all of you.

I am in the same boat but luckily I can handle Cimzia.

Have you tried LDN? If not, look into it. I pair it with my Cimzia and it made such a difference for me. Many people use it as a stand alone treatment and although it may work for me as a stand alone drug, I am afraid to risk it bc this crohns is trying to kill me so I rather just stay as is.

Take care!

I'm thinking of asking my doctor about LDN. Wouldn't mind switching up to Remicade and adding LDN over Methotrexate.

Sorry that you have been suffering. Hope that you find a relief in entocort, sulfasalzine and hyoscamine. Hope you become better soon :)

You deserve a vent with that kind of thing happening. I'm so sorry that you're having so much to deal with. I hope the older meds will help.