How I Solved My Crohn's Puzzle

I went to your website, and I am....confused because when you first mentioned your blog here back in January, and someone thought you were trying to use this forum to promote a product, you said:

"Hi sorry was only trying to share free info that could help people. Was not trying to market anything for sale..."

The moderator gave you permission to post a link to your blog, explaining to the skeptics that he/she was giving you the benefit of the doubt, which was very nice of him/her. I admit I felt a bit ashamed because I too was somewhat skeptical, though I never posted a comment.

What I found at your "blog page" was a posting that appears to have been written in November 2013, not something that was recent, like you were adding to it regularly.

The links at the bottom and top are all to books that you authored and ARE promoting, with links to sellers, like Barns & Noble. There's nothing wrong with your selling books in general, but I don't think that's allowed in the forum.

What I don't understand is why you said that (I) "Was not trying to market anything for sale..." when it appears to be exactly what you are doing.

Maybe it's just me.

I guess your blog page isn't updating, but it wasn't back in November of 2014; it was November of 2013 that the original article was dated. If you've been blogging since that time, it's not posting.

I'm not trying to nitpick but there are rules against using the forum to promote products and services. When I went to your site, the first impression I got was that you started the blog over a year ago, and didn't follow through. And then I wondered, why would you post here in this forum that you're doing a blog when, clearly the blog has not had one new entry in over a year? Then I noticed the links to your books and that you're a speaker.

Also I noticed that the book titles were very similar to the title of this post, "How I Solved My Crohn's Puzzle" - one was The Healing Puzzle and the other almost identical to this post - Solving the Crohn's & Colitis Puzzle. I guess you can see how I jumped to the conclusion that you were trying to promote your books.

I'm glad your cleared that up. I must have jumped to the wrong conclusion.

I finally got the proper help I was looking for & was able to set up a personal blog page. I initially spoke to 2 social media experts who I thought were the people to get advice from but after my initial posting that went wrong, I asked the graphic artist I used to help set up my website & he was the one who gave me the solution I originally was looking for. The new link is in my signature.

I don't know if it's happened - I hope not. That's just what my doctor told me back in the late 1980's but using immunosuppressive drugs for Crohn's was a new treatment then. For me I was glad he said that because it changed my course. However, my college roommate's son was on an immunosuppressive drug (I believe Remicade) & unfortunately he got bone marrow cancer.

I went to your blog again since you said you got it fixed, and from what I read, well it appears to be the same page you posted back in November 2013. Maybe a slight tweak at editing. Where are the rest of your "free tip of the month" blogs that you mentioned in your above post?

You stated:

"Oh I'm so sorry I didn't know that happened. I copied the page link for my blog so it would only show what I wrote as this months free tip of the month blog." (Posted 2/18/2015 9:16 PM)

Hi JaSanna, I restarted the blog titled solving the Crohn's puzzle using BlogSpot from Google & put the new link on my signature & deleted the old link from word press so it should be my 1st blog that I just started about affirmations. I am hoping to post the 2nd blog on topic of hydration tips in the next few days. The post from Nov. 2013 in the word press link was just something the person who started my website had written as a welcome message - I only wrote the one blog so far & wanted to write my second one in the next day or so. I want to add at least 1 tip per month & more often if time allows me in my schedule.
Also to answer Bane's question, I can't personally say the bone marrow cancer & use of Remicade for my college roommate's son's Crohn's disease are related, but my college roommate told me she feels they are. I happened to remember her telling me that when I wrote my comment so I added it.

Hi bc1,

You can start a post with a title like "To jpnutritionfirst" to get his attention if he doesn't see this post.

Brelaxed ... Spot on! 14yrs on Imuran and I've not died yet (well not so I've noticed!). Not even got more colds. True that in biologics one has to avoid infectious diseases ... But really... This type of rubbish is at best unhelpful and at worst dangerous.

Bsteingas ... Worth considering, just because you have an opinion does not make it worth sharing ... Hearsay as facts ... Pah! Just so annoying. Off to pop some more immunos with absolutely no fear of what you suggest.

I don't believe in negative posts - nothing helpful to say then say nothing ... But in this case I had to comment.

That was probably the most ridiculous thing I've read. You can not "wish" a disease away, and that's insulting to even suggest that we can. I hope the mods take back you being able to even post this dribble.

I appreciate your input BRelaxed. I meant to acknowledge you for your previous input -I didn't feel attacked by your comments. When I wrote the part of personal attack, I was a bit shaken up and I did feel a bit ganged up on at the time - I do realize though why you guys responded the way you did & that I was nervous & had been sticking my foot in my mouth.
This whole thing didn't go at all the way I intended. I got poor information from people I had originally asked for advice who I thought should know how I could share my blog info diassociated from anything of a marketing nature. I could have used all of JaSanne's insightful suggestions beforehand. That's what type of information I was trying to get ahead of time, but failed.
I was extremely ill myself with Crohn's for a long time & suffered a lot, so I do understand how people can be scared & I didn't intentionally mean to say scary insensitive comments. I discovered thru this learning process that I have lost touch a bit with the actual experience of feeling ill....kind of like what happens to managers at jobs who used to be a staff worker & have forgotten what it's like to be in the trenches so to speak.
When I was going thru my journey there was no internet or support groups that I knew of - the internet & personal computers weren't mainstreamed yet. It's great you guys have this support & community.
I apologize again to the group for this whole fiasco...I have learned a lot from all of you. If possible I would do this thing all over but much differently because again all I had intention of doing was sharing with the group. I thought from what I learned so far in classes/tutorials on the internet that a blog was a good way to do it because people could click on it only if it interested them rather than having to read a long post here.
I realize now what I should have done was just gotten to know the group better (just like I would do if I met you in person) by checking out more of the threads & adding posts where I could share something of value would have been a better way to try to help & get comfortable with this online venue that's new to me & alleviate my fears of the internet unknown.
Like I mentioned in my last posting, this online stuff feels a bit like going to a foreign country to me & not really knowing the language or customs. As with most fears, our brain can make more of it than it really is. In real day to day life when interacting with people I make personal connections & share positive ideas. I don't know why I was so intimidated/nervous of the internet connection domain. By doing so I ended up making things more complicated & made a royal mess of things.