scifigal2k said...
Some naturopaths have their uses - I have a great acupuncturist that has helped. However, many are frauds and if they do not have a medical license then no, they are not considered doctors in the eyes of the law (maybe the insurance companies in some instances, but can you really trust those guys?).
As mentioned above, the naturopath was recommended to me by a friend. She had UC, was being told to have her colon removed, and she sought help from this doctor instead. That was 2 + years ago, and she is still doing well (and has her colon). Also, he seems to have quite a following. He has offices in NY, CT, and AZ.
scifigal2k said...
Sometimes you can adjust your diet and feel better, but have Crohn's still simmering in the background. The SCD is the only one that I have heard of to truly have evidence that it works for multiple people.
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Yes, you can have it simmering in the background, but not in my case. I just had a clear capsule endoscopy showing that all of my inflammation is gone.
SCD definitely appears to be working for a great deal of people, which is why I am still following the diet. I do not plan to stray from it for at least a year after my last symptom, which is what is recommended in the book.
scifigal2k said...
And considering I take my disease VERY seriously and have explored MANY options from ALL sources (not just western medicine), I think I would have heard of what you're talking about by now (30 hospitalizations in 3 years and sepsis two times will cause you to do in-depth research).
I’m sorry that you have had such a hard time. I would hope that anyone with any major disease would take it seriously, and do some research of their own, and it’s nice to know that other people spend hours on the computer trying to find answers. I do this too. If you google “Crohn’s + Yeast Allergy” you will come across plenty.
Here are just a few of the many things I’ve found:
From this ( http://www.ncbi.nlm.nih.gov/pubmed/11760647 ) pub med document: “It is speculated that the yeast-free diet as a part of the therapy for the ASCA positive patients can be reasonable: moreover the permanent "forbidding" of the yeast can be an acceptable alternative in case of getting well.”
And from this one (http://www.ncbi.nlm.nih.gov/pubmed/12579538 ) “The findings of cross-reactivity of polymorphonuclear leukocytes with S. cerevisiae antigen and the presence of S. cerevisiae antigen in Crohn's disease granulomas suggest the possibility of involvement of S. cerevisiae in the pathogenesis of Crohn's disease.”
Here is an article linking allergy to Crohn’s: http://www.drmyhill.co.uk/wiki/Crohn%27s_disease_and_ulcerative_colitis_-_inflammatory_bowel_disease_responds_well_to_the_environmental_approach
Here is an article linking a reaction to fermented foods (yeast) to Crohn’s:
http://www.docsalus.com/blog/2014/03/17/fermented-food-yeast-related-reactions-involved-autoimmune-disorders/
Here is an article explaining how milk sugar cross reacts with yeast, and is specific to Crohn’s. http://thefooddoc.blogspot.com/2007/12/yeast-sugar-also-found-in-cows-milk.html
Here is one explaining the same cross reaction with gluten: http://drclark.typepad.com/dr_david_clark/2013/10/most-dangerous-foods-for-gluten-sensitivity-celiac-disease-gluten-free-diet-2-yeast.html
I also came across this person, who had a similar experience with yeast and Crohn’s, from this very same forum: https://www.healingwell.com/community/default.aspx?f=17&m=2669712
scifigal2k said...
If only 60% have it (which has been disputed by other posters in this forum, but you refuse to listen to them) - then what are the other 40% supposed to do?
Who has disputed the 60% number? Maybe I’m missing something…?
scifigal2k said...
The article you referenced only says that the antibodies MAY have a link to SEVERITY of disease, not causing Crohn's itself. If only 60% have it (which has been disputed by other posters in this forum, but you refuse to listen to them) - then what are the other 40% supposed to do?
Yes, but why do up to 60% of people with Crohn’s have these antibodies? And shouldn’t you remove anything that might possibly be triggering your immune system in any way when you have an autoimmune issue?
As mentioned above, no one knows for sure what causes Crohn’s, and there are likely more than one problem going in to play when any person develops it, just like cancer, heart disease, etc. But if there is a chance that a dietary change *might* help up to 60% of people who do have it, wouldn’t it be worth a try? It can’t hurt anyone. It has no side effects. And if it doesn’t work, you can just cross it off the list of the many other things you may have tried.
But if it did work for you, wouldn’t that just be awesome????
scifigal2k said...
And no, your GI is NOT a top one for recommending Pentasa - he is uninformed and old-school. That would be like someone who gets a yeast infection being told to just eat yogurt and they'll be fine. Or a cold virus being treated with antibiotics.
I don’t know why you are all focused on jumping all over my GI. It’s completely off topic, since I never took the Pentasa, and never commented one way or the other if it would help. Like most GI’s, my doctor also doesn’t believe that diet can changes can help either.
Listen, I joined this forum to share my “carefully expressed experience” in the hopes of helping others.
I did not come here “claiming” to have found a cure. My post started with a question, “Have you tried…?”
Instead of learning if others have tried this too, and what results they may have seen, and/or seeing if others might give removing these foods a try…the response I received was to have all of you jump all over me.
I have better things to do with my time then to argue with others on the internet, especially when they “refuse to listen” to me either, or even consider what I might have to say. I wish you all the best with your health. I will no longer be posting on this forum.
Post Edited (D.Owczarek) : 4/3/2015 7:52:40 AM (GMT-6)