I had a feeling, I use to get the smell several years ago, but can't remember what/if anything came after..Yep, just had the capsule endoscopy, that's why the Prometheus Serology 7 blood test, which doc said will make it difinitive. No more trying to heal with a bandaid. This way, he'll know with 92% certainty what's going on where, and he can get me on the best treatment. I started at the colitis forum several months ago, but since coming here, I feel like most of you experience symptoms the same as mine. Not that the other forum didn't, just not quite the same, I see alot of you are crohn's/colitis. I feel like that best describes me! I regret that any of us has to be here, and feeling so bad. I get the time change here, and this week has got me all screwy too....maybe a connection? Some people explain the smell as "an electrical charge"...Anyhow, I see doc on the 18th, and I will ask him, unless it manifests itself sooner & I figure it out on my own...I promise to post, when I do see him....so far as the oscopies show...I've got proctitis/colitis of the lining/and now the 2 new spots in small intestines, one at the terminal ileum, the other further in, and spreading. I also noticed that this week I've lost my appetite again, and I was doing so good for awhile! Not that I couldn't stand to lose about
60 pounds, cause I could, just not this way...starving...
..anyhow, thank you all for being here for me & each other! It's a Huge help just knowing I can come here & get the understanding I definitely DO NOT get here!!!!!!!(home)