Posted 1/19/2016 4:03 AM (GMT 0)
It sounds like it'll be an end ileo rather than a loop one, which is easier to manage - just make sure your surgeon knows the importance of creating a decent spout. Half the problems people have with stomas are caused by the opening being too close to the skin.
And yeah, you can bathe/swim with an ileo, not sure why you think you can't. I dunno about exercise - it tends to be an activity I go out of my way to avoid. I do know that there are bodybuilders with ileos, though, so weight lifting, etc. is possible. Probably not advisable for the first few months after surgery while your abdominal muscles are still healing though.
If you're thinking of having a permanent ostomy, then that changes things slightly. Me, I think I'd be too nervous about the Crohn's coming back in the rest of my colon if I'd had a colostomy (it was never an option for me, as my whole colon was affected). But otherwise, all things being equal, a colostomy is probably easier to manage than an ileostomy.
But ileostomies are pretty piss-easy once you get used to them and your bowels have adjusted to their new plumbing - this can take up to a year, although it's not like you'll be emptying the bag a zillion times a day before that. For the first year, I was needing to get up once in the night to empty the bag but after that I was able to sleep right through without needing to get up once. Emptied the bag about 4-6x a day. It's probably a bit easier for women, 'cos they're always going off to the loo to take a pee anyway - men don't so much. But that said, if you have Crohn's you are probably already used to frequent toilet visits.
Technically you can have a diverting ostomy forever, but you don't really want to leave a defunct colon in your body for 10 years. It's not a great idea. There's a high probability of developing diversion colitis for a start. It's not as bad as Crohn's, but it's still inflammation and it's still not particularly healthy.