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Crohnies I need advice with an embarrassing problem!!

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Crohn's Disease
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Posted 2/4/2016 7:03 PM (GMT 0)
GAS!!!
The worst gas possible! Starting within 20mins of eating a meal and going on for hours! All through the night all through the day lots of hot smelly gas!

I was diagnosed July last year and am on mercaptopurine chemo tablets, my symptoms have been very up and down but for the past 3 months terrible gas getting worse ever week!

I thought maybe I have developed an intolerance so I've tried cutting lactose and wheat... To no avail! I saw my GP today as I also suffer from anxiety and depression currently greatly exasperated but my smelly problem blush I asked to see a nutritionist to discuss possible dietary changes but GP thinks it's all to do with Crohns, I feel like I will be bugging my Crohns nurse if I call about this though. Please help! All advice welcome
Posted 2/4/2016 7:42 PM (GMT 0)
Don't have any help to offer except moral support. I have bouts of it and I actually came here today to post the same thing. I have had it bad for 2 or 3 days since I had a stomach bug on Monday. Usually I can regulate it a little and let it out in somewhat seclusion, but a few have slipped out and I'm surprised nobody passed out. Today my silent but deadly nature has given way to the complete horn section. I had a few coworkers laughing out loud a few minutes ago about one. I'm horrified right now... (and laughing at the same time.)
Posted 2/4/2016 7:50 PM (GMT 0)
Hahaha countrydad, poor you I feel your painful embarrassment! At first I was amused by it but now it's getting way beyond a joke! I have my mum living with me to help when I'm unwell and I have two girls ,4 and 7 and they are all fed up of it! I'm literally so gassy I'm passing every minute or two! I'm now confined to my room for the evening as the family can take no more lol it is amusing but seriously affecting me now
Posted 2/4/2016 7:53 PM (GMT 0)
I warned my wife about it when she got home. Then the first one came out. about a minute later she says "Oh wow, that is bad." Sigh. Such is life.
Posted 2/4/2016 7:57 PM (GMT 0)
Haha such is life!! I wish you luck!
Posted 2/4/2016 9:19 PM (GMT 0)
I have this problem for many years. In my case it is because of strictures that trap the gas until I become really distended. After eating and the digestive process begins the stricture loosens as food passes through it and the gas passes out in mass quantities.

Compare it to a balloon were you are holding the neck of the balloon, once you loosen the neck the air rushes out in a farting sound. There are pills in the market (Usually charcoal pills) that consume some of the gas. In my case I take Bentyl which is an anti-spamodic like Donnatal. This reduces the distention and gas.

At night I lie on my right side to watch TV. This position loosens the intestines and it is fart city, I have a separate bedroom for this with overhead fan and sprays. By the time I go to bed there is no more gas left.

Through the day I am on a bowel movement schedule: in mid morning and mid afternoon I always go to a one toilet bathroom at work where I let it all go, usually most of the gas gets cleared out.

Finally you need to research foods that cause gas: beans (of course), cheese, milk, check out this link or google Gas producing foods

http://www.activebeat.co/diet-nutrition/33-trigger-foods-for-bloating-control-your-tummy-bulge/4/
Posted 2/4/2016 9:25 PM (GMT 0)
Emilyrose,

I understand this! I deal with the same issue intermittently. I try to make light of it and laugh when I can, but it's not always easy. As a nurse I can tell you that I highly doubt your Crohn's nurse would be bothered if you called to inquire about it. She may have some helpful ideas and tips for you. :) I have tried Gas-X pills and actually felt worse... but that's just my personal experience. Otherwise I find that if I lay down on my stomach with my leg pulled up (like in the colonoscopy position) I am able to relieve the gas much easier than in any other position. Downward dog yoga positioning also helps. ;) Hope I got you giggling. Positivity coming your way!
Posted 2/4/2016 11:13 PM (GMT 0)
OMG - I feel your pain! It starts about 2 hours after I have eaten even the tiniest bit of food! I light candles in the house just in case some gas slips out!! LOL - it is so awful that it is funny! I really wish there were an answer. I can't eat all day at work because of this, and some days, I can't wait to get out of there so I can feel less abdominal pain - windy days are great!
Posted 2/4/2016 11:24 PM (GMT 0)
I too suffer from excessive gas that begins following everything I eat. I can eat a saltine cracker and begin to fart. Unfortunately, mine are very loud and therefore embarrassing.

My GI offered to prescribe Xifaxin as he felt that I am suffering from bacterial overgrowth that began after several episodes of intestinal issues [c. diff, ischemic colitis hemorrhage, and 3 cases of diverticulitis]. I declined but am rethinking this. Tired of the farts!
Posted 2/5/2016 12:14 AM (GMT 0)
I can definitely relate. When I have excessive d, it is odorless. When things become worse and I become very distended, my GI puts me on rifaximin (xifaxan), too. I have been on it for almost a month and will continue till after my second loading dose of Remicade. It helps a lot.
Posted 2/5/2016 3:16 AM (GMT 0)
Hi, this diet has helped me go from a gigantic gas blimp with a constant leak to a tiny balloon, perfect for birthday parties, (except I can't eat the cake or ice cream : ( Some foods on the list are worse than others for gas, I stay away from the bad ones. Trial and error.

http://www.ibsdiets.org/fodmap-diet/fodmap-food-list/

Hope you feel better soon!
Posted 2/5/2016 9:01 AM (GMT 0)
Wow so I'm not the only one then!? This is worrying but comforting to know haha I feel for you all!! Thankyou for all the advice, I've not eaten yet today and no gas!! But this can't last long I'm having scrambled eggs on seeded brown bread for breakfast as I'm trying to be healthy... To be honest now I've realised that it doesn't seem to matter what I eat I still have crazy gas!

I have a sigmoidoscopy on Monday so I will speak to my consultant about it for some advice as its that bad it's getting me down!

The struggles of a crohnie 😩
Posted 2/5/2016 1:19 PM (GMT 0)
For me, it's always fiber that gives me lots of gas. Seeded brown bread would be a big problem! Maybe keep a food journal?
Posted 2/5/2016 2:02 PM (GMT 0)
I second Big Betty's recommendation to look at the FODMAPS list. I don't have any gas problems with dairy or gluten but eat a little onions or garlic and watch out! I think a food journal is a good idea; and remember that it might take a while for the food to cause the symptom. Sometimes it's immediate while other times it can take 24 hours(at least for me). This can make it difficult to track unless it's written down.
Posted 2/6/2016 3:58 AM (GMT 0)
I really haven't had too many gas issues. My problem has been horrible smelly sulfa burps. Sometimes they smell worse than the farts. Has anyone else encountered this problem and what causes it
Posted 2/6/2016 6:57 PM (GMT 0)
Wondering if enzymes would help until you figure out if it is specific foods? I use Digest Gold by enzymedica
Posted 2/6/2016 7:24 PM (GMT 0)
That's a good idea... I think I'm entering a flare today as the cramps, gurgling and weak to the core feeling has taken over :( I hate this disease!
Posted 2/7/2016 3:27 AM (GMT 0)
You might try liquid chlorophyll. I get the mint flavored one by Natures Way. It helps some with the gas but mostly helps minimize the odor. I used this for years for my UC and it was one of the few things that ever helped me. Now I have an ileostomy and it still helps with odor. If I'm going to be eating something like fish I drink a tsp in some water beforehand and it works great. The only downside is it has to stay refrigerated so can't pack it around with you. One more idea for you.....:)
Posted 2/8/2016 12:41 PM (GMT 0)
My recommendation .... marry a man who stinks as much as you do! I love that my husband can good heartedly rib me about it, but gets the serious issues too.
It is hard in the office to handle the situation. I mostly try to keep moving! Someone recommended an eye dropped bottle filled with OJ for the bathroom...it does work. I also saw Poo-pourri at BB&B and wanted to get some of that.
Otherwise, to quote my husband...Everybody Farts...maybe they'll blame the nearest guy to you!
Posted 2/9/2016 1:15 PM (GMT 0)

Bucko said...
I really haven't had too many gas issues. My problem has been horrible smelly sulfa burps. Sometimes they smell worse than the farts. Has anyone else encountered this problem and what causes it

I have this problem here and there. I hate it so much. Do your burps come with any other symptoms? I HATE those burps!
Posted 2/9/2016 7:38 PM (GMT 0)
I think really smelly and excessive gas after eating is probably indicative of SIBO (like some others have mentioned) and would benefit from an antibiotic like Flagyl. I used to have bad SIBO before my surgery and the gas was horrible smelling with really bad distention and loud gurgling sounds every night, but would virtually disappear after a course of antibiotics (it always came back of course because of my strictures, but the brief respite was nice). You could get tested for SIBO to see if that's it, it's a relatively easy test. Before I was tested I tried everything, including diet changes, activated charcoal, gas tablets, increased water intake, and eventually not eating at all on days that I had evening plans.
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