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Started Entyivio Yesterday

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Crohn's Disease
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Posted 2/19/2016 6:25 AM (GMT 0)
Cleared my head, Nurse said Crohns affects sinuses, never heard that before news to me. So far so good. most of the stuff i found on this drug is from 2014. Just hoping this stuff will help.

My hat's off to the Iron willed people on this board.

T
Posted 2/19/2016 10:08 PM (GMT 0)
My only problem with Entyvio is that the benefits did not last very long for me. It took probably 6 months before I really noticed a marked improvement, so give it plenty of time. Honestly for me it had zero side effects and worked- for a short time. Here's hoping you get endless remission out Entyvio!
Posted 2/20/2016 2:57 AM (GMT 0)
:-) {{CROHN'S}} Thanks for the feedback.

T
Posted 2/21/2016 7:46 PM (GMT 0)
Wait, in one day Entyvio cured your sinutitis?

I've gotta get on this stuff! #ChronicSinusIssues
Posted 2/21/2016 7:55 PM (GMT 0)
That's what I Felt, my head cleared. I work in a warehouse that is about 2 million square feet. Lots of cardboard dust, it is in the air so it does not matter if you are in the office or not. You just get all clogged up. I'm a lot clearer now.
Posted 2/21/2016 8:27 PM (GMT 0)
Jeez, I want to try it now. It also has the advantage of being virtually the only Crohn's med I haven't yet tried (and failed).
Posted 2/21/2016 10:35 PM (GMT 0)
@question everything- Did they give you any "pre" drugs before the entyvio? It is possible one of those was the source of your sinus epiphany!


@ncot- Entyvio was absolutely great for me. My only problem with it is it lost efficacy pretty quickly, but all biologics lose efficacy eventually I guess. I hope you can get on it.
Posted 2/22/2016 10:14 AM (GMT 0)
No pre drugs. saline after the Entyvio. I washed it all down with 20 oz WAWA coffee. Then I went to pull a 10 hour shift.
Posted 2/22/2016 2:50 PM (GMT 0)
Wawa? Yo, a fellow Philly person?
Posted 2/22/2016 6:50 PM (GMT 0)
I'll be starting Entyvio as soon as they get the auth from my insurance. I hope it is soon, my last humira shot was 3 weeks ago.

How long was the infusion? 30 minutes as advertised?
Posted 2/22/2016 8:25 PM (GMT 0)
First question actually, Delaware.

Second question, 40 min due to I got a shot of saline due too dehydration.
Posted 2/22/2016 8:32 PM (GMT 0)
Well, Delaware's basically a Philly suburb. ;-) Except it's much easier to buy alcohol. Good luck with the Entyvio. I've been on it for over a year and a half and I feel it's really helping me.
Posted 2/22/2016 8:40 PM (GMT 0)
Yep, close enough. Think UD.
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