BRelaxed said...
If you do have crohn's then you wouldn't blame others with the disease for being skeptical.
What specific verifiable evidence do you have that this product, and only this product, put you into clinical remission? How long did this remission last? How did you confirm that you were in remission? Are you now and have you been on any meds? How long have you had crohn's?
Thank you for your question. (like many of you I would have to write a book to really tell my whole story but I will give you the long yet short version) I will start with how long I have had Crohns: I am 50 years old in April. Like many of you i'm sure, I had suffered through & lived with undiagnosed crohn's for many years before they finally figured it out.... Here in the USA with constant changes in our insurance & constant changes to net work providers I had many different Dr's over the years....& lets not forget the Drs were not all connected on line with the internet until just recently, so even though all the signs were there... the signs were not getting to the right people!
(also I must add I have & had other real medical issues that masked the Crohn's)
When I was a teen the Dr said I had a "bad stomach" so... I missed a little school & ate like a bird.....between the age of 20 & 30 I was diagnosed by a GI as having IBS & hemroids. Explained the diarrhea and occasional blood & when time went on and things worsened causing me worry & doubts when I complained I was made to feel like a hypochondriac, So IBS was all I had ( I also need to mention to give the GI's credit due to complaining , that I had my 1st colonoscopy when I was around 32 & it came back fine. besides hemorrhoids) I know now that they did not find anything because my problem was in my small intestine & not the bowel.
around the age of 40 things really picked up...
So around that time I had server pain in my chest... sternum area and went to yet another GI and had my 1st endoscopy & was diagnosed with severe 3rd degree esophagitis. ( Even though I rarely experienced acid reflux the ways others do I rarely & most certainly at that time can honestly say the feel of stomach acid rising up into my throat or mouth was not happening to me.. But I was put on Nexium which was still a prescript
ion then & the 1st drug of its kind to not only relieve symptoms of but cure ulcers in the upper GI track... So after that when ever I had upper issues or what was thought to be stomach, I took and or was told to take my Nexium.... I knew something was wrong with it all..Oh lets not forget the occasional cold sore/ulcer's in my mouth. (not to severe) it just did not make sense but Dr's were not about
to keep running test because I was not comfortable with the situation, & insurance had its limits.
Things continued to go down hill.... I had a job that required me to eat out ALOT 2 to 3 times a day & not fast food....I weighed over 200 lbs at the time... diarrhea was normal but things worsened... sometimes I would have to run to the john after taking only a bit of food.... sometimes I would get sick during the meal...I ALWAYS ended up in the ladies room 2 hours or sooner after eating... If I ate greasy I would get sick & or have to run to john before leaving the restaurant, then make pit stops on the way home.... I stared eating more veggies and broccoli was a common side dish.
You can imagine how shocked I was to see the tiny broccoli flowers in the toilet only a couple hours after eating it.. undigested... by this time I was use to pain before & after bowel movements... But I knew something was wrong... but because of that 1 clean colonoscopy I could not get Drs to take me serious... Stomach pain began to get worse and worse during and after eating, instinctively I knew or at least suspected I was bleeding in my abdomen, so I went to the drug store & I bought these strips that you put in the toilet after a bowel movement & it would turn blue if there was any blood... & of course it did.
So now I'm in severe pain & I have my leverage! right? i'm in pain & hubby takes me to the ER where I'm sure now that we know there is blood in my stool their going to help me....
Nope.... The dr decided that the blood was probably (you guessed it!) hemorrhoids! & my pain? was psychosomatic.... "because I knew there was blood in my stool, my brain said I should be in pain...." or something like that.
Ok lets get to the finally....like I told you I was a little over 200 lbs around 2006 & I ate out every day Monday through Friday at least 1 to 2 times a day & breakfast on Sunday & again.... all meals were free & I was getting paid while I ate at places like Rubytuesdays, Redlobter, nice ethnic restaurants even some high end 4 & 5 star places (I had it good..... if I didn't have un-diagnosed Crohn's) and all the eating out was probably the only thing keeping the weight on me.... though I did start loosing weight even then, but due to an Auto Accident which harmed my back & neck I had to give up the job in 2008. This is where things go south....
After not being able to work.... I began to shed the weight... I lost weight faster that a person who had the gastric bi-pass surgery..like a pound a day! I had acquaintances accusing me of being anorexic...I was not trying to loose weight.. after loosing all my body fat (and being on pain meds bulked up my stool sometimes ....) I knew something was seriously wrong but it was assumed that it was all due to no longer eating out 6 days a week...
the diarrhea would come and go and the worst episode ever... came 1 night... it was severe so was the pain and every time I hit the restroom I waited for blood... (talk about
psychosomatic!) I just knew it was coming...and it did... don't remember for sure but maybe I thought my diarrhea was reddish or maybe I just knew but after the stool was completely gone I saw nothing but bright red blood... & I was running to the John every 5 mins to pass blood this was on a weekend so I could not get into my Drs which who referred me to the ER, I waited (I had little faith in them) the next morning I woke up having to run to the john & passed blood & blood clots... ok off to the ER...
Got admitted.... got another colonoscopy I had ulcers all over my colon... ok test were run they were certain it was infectious / bacterial colitis though they could not pin point what I had... no E-coli, Salmonella bla bla bla... & they did not seem to care about
my weight loss.... they put me on a coctail of extreme antibiotics... kept me for about
a week & even though nothing had changed.... I was still bleeding just as bad on my last day as I was the 1st the said " it will take few days for things to clear up" and sent me home....
3 days later in misery I went back the ER still bleeding just as hard... The treated me like S#!T made me feel just as bad did nothing & sent me home.... ( I guess I didn't give it enough time) finally after 2 weeks passed I called the office of the GI that saw me.... the same one that let them all treat me like dirt and asked him kindly.... just how long is it going to take for this bleeding and abdominal pain to clear up? & he said... " Oh well you should have cleared up by now..." (now I had lost my job was trying to get on disability & had no insurance at this time...) so 1st i pay $90 just to see him in his office to set up the new colonoscopy which showed no changes possibly worsening...my Italian mother in law went with me on both office visits & he introduced himself apologetically as the Dr who tortured her daughter in law.... By now I am fairly certain I had Crohn's my sister had it for years and I was able to put all the pieced together....But I could not get the Dr to do the same. So I get diagnosed with Ulcerative Colitis & put on Asacol.
The Asacol did not help...not understanding how the pill worked you can imagine how surprised/weirded out/ curious pretty much stupefied to find this redthing with white goo starting to emerge out of it.. in the toilet with my bloody stool.... (malabsorption syndrome) just like my food I was now realizing my pills were going right through me... Called the GI.... again I get the run around....
Ok nothing is helping me.... I am NEVER going back to the 1st hospital where they treated me like dirt just for being sick! the same one that sent me home with psychosomatic pain... as a matter of fact I was sick of Drs lost trust in them.... so I delt with it.... eating hurt... food went right through me but the bright red bleeding stopped but I still had mixed color stool...(tarry) ... so I started drinking my meals "Insure" Choc & strawberry were not bad but I probably was not absorbing them properly... I became weaker and weaker I am skin & bones by now... (if you would have asked me a year earlier how I would have felt to loose every inch of fat I would have said bring it on!) but looking like a person from a concentration camp was not a pretty site.... on top of malnutrition... I was in danger.
One day I woke up and I had huge Ulcers in my mouth & from the way things felt down my throat.... That same day 2 of my teeth cracked....I had already gone down to 1 ensure a day because even they hurt my tummy but that day I couldnt even drink one... or water or anything... because of the ulcers... when I couldn't walk from 1 room to the next hubby called 911. They took me to University hospital its the best equipped for trama and life threatening illness.... they had no idea what was wrong but blood test showed liver problems and I don't know what else... I told them I had Crohns... I was in there ER all day The Dr could not figure out the large Ulcers in my mouth... they were "abnormal" not little blisters I had huge nickle size ulcers.... I told I kept telling him it was crohn's.... all of a sudden the urge to use john hit... ( liquid IV kicked in) after passing stool... waaa laaa pure blood again...& this time it was at the right time.... they were collecting my waist and they got the blood...lots of it...between the bloody the ulcers & my liver (which I forgot to mention the Dr could not understand I did not drink, COULD NOT drink Alcohol.... 1 sip of beer would make me sick.... but obviously my liver was not in good shape... anyway it all earned me a bed in their hospital.
Next thing you know a team of Drs were visiting me....I told them I had Crohns... They knew the Dr who treated me for my 1st infectious colitis then ulcerative colitis ...so I think they knew I did not have the Diagnosis... but fortunately for me they asked questions! I was able to tell me about
the 3rd degree esophagus, which they could verify, I had the ulcers in my mouth, the bloody stool, the rapid weight loss what ever else was in their blood work... my family history of Crohn's...
They gave me 1 simple test (after all these years) "one" "simple" test. they did an MRI of my tummy ( small intestine... the part where the colonoscopy can not go into....
Diagnosis: Active Crohns
I wasnt crazy after all... and after years of thinking Drs were perfect & deserving of the utmost respect I learned I knew my own body better than any Dr out there.. they are not perfect they make mistakes and though I choose to respect most of them I learned not all deserve it....and I deserve respect too...
After that it was the Asacol again... which was not working for me of course I was on a fairly rigged diet.... I was between appointments on my last Visit to the ER..... Bleeding again in severe pain.... when a nurse asked me if I had ever tried Aloe Vera Juice.... I admitted I never even heard of it....I dont remember her exact words but she highly recommended it... the next day after I got home my husband found it for me....
after months years even of pain & misery it took only days.....7 14 I dont remember.... But when I went in to my appointment the Dr poked around on my belly and for the 1st time in I dont know how long I had no pain at all....
Ok no test were run... to find out if I was in remission... I assumed I was... So I will take Jen77 advise & yours BRelaxed and let the Drs tell me when I am in remission or not... I guess after going through it for so long when you finally find relief you run with it....I had elderly parents that needed me so If I was not in true remission I at least was able to live some semblance of a normal life... I know the Juice helped me... weather I achieved remission I was pretty sure I did but no Dr confirmed it... I also went from Skin and Bones to a nice body weight...it may not be a cure all.... but I swear by it....
That was my story of dealing with Crohns...and why I believe in Aloe Vera Juice.....
Post Edited (laceymikesmom) : 3/23/2016 6:26:03 PM (GMT-6)