Bad day- Anyone have any good stories?

I'm trying to prevent myself from going into a long rant/cry time about how hard it is deal with this disease, a severely ill parent who's life has been basically in jeopardy since March and is your only support and all other family who has walked away/are toxic to your health and emotional wellbeing because they find people who have health problems that can't be "fixed" a waste of their time, friends who don't understand and financial issues and a grad degree I'm trying to finish despite all of this.
Soooo.... To spare us that ( I don't know if I succeeded or not) , anyone have any positive things to report? A good day maybe? Any accomplishments even small ones? any amusing hospital experiences besides the horrific ones?

Post Edited (Labradorite) : 7/15/2016 12:19:36 PM (GMT-6)

Three awesome things that happened to me today:

1) My coffee order arrived a day early. Now I don't have to worry about running out of coffee over the weekend.

2) My favourite deli made clam chowder today. Yum.

3) It was cool enough in the living room this morning for me to have the fireplace on while I got ready for work.

Okay, maybe #3 worked out better for my cat whose old bones love being in front of fires, but it was an awesome thing for him.

@minnitoty thanks:) hugs to you as well!

@F27 it's the simple things that count the most in making the day manageable! A happy cat makes a happy home.

@pb4 thanks! Yes I've looked into meditation. I used to do it a lot more when I had more time. It helps, though right now I get the most help from the art that I do. I take it everywhere and use that as a productive escape and it really makes a difference because I can focus on that and also feel like I've accomplished something. I I would even do it in the hospital and get requests from the nurses for a little something they could take home, which was wonderful and rewarding. I should clarify that the family issues were going on long before I became ill and the crohns just made it harder for me to cope with it and get away from the toxic relationships. I have an extremely small family- The other family members I mention is really just my brother and father both are not people you want to have in your life unfortunately and I have been told to do what I can to limit my exposure to them. I shouldn't even care what they have said or done but sometimes it still bothers me. My friends are wonderful and I have a lot of good ones, unfortunately most live rather far away so we don't see each other as much as we'd like but I am lucky for those relationships and they understand as best they can, always call when I'm sick etc and are happy to listen because I'm good at keeping it fairly light hearted and finding some sort of joke amongst the misery (which I am unfortunately terrible at when I post on the forum-sorry for that :/ ) . It was another friend that I saw recently who is not as close who I met with, this person specifically asked questions that brought up my situation and criticized me visiting my mother everyday, couldn't understand why I would care so much and why I was so positive about things. Totally brought me down I shouldn't let it bother me and should take this person off the list of friends since I do have enough other people that do understand but it still hurts. But yes- a good dose of meditation might help me remove these people from my mind.:)

Labradorite,

Recently, I posted a rant, noting that there had been alot of us posting rants lately. It seems like many of us are just going through some tough times.

I really like "Myrne's" post. She's so right when she says, "things do get better", "even if they get bad again, they will eventually get better".

As tough as it is to do, and as easy as it is to say, we really have to dwell on that.

It sounds like you do have some very good friends. Hopefully they will become more supportive during this tough time.

I think that meditation is also great advice. I would add that you try praying. Not going to ram that down your throat don't worry. Just a suggestion.

The problem with the Buddhist approach is that, even when I think I've let go of all expectations and can't be disappointed any further, somehow I still am. I'm working on literally no longer being surprised by anything anyone does anymore, but I'm not there yet. I still raise an eyebrow sometimes.

I also have a pretty toxic family. For now things are okay with them, but that is because I'm choosing to not say anything rather than confront them with their damaging shi!t. I don't feel in a position to cut them out of my life, but if I had an alternative family in real life I might not necessarily do it, but I would at least give the idea serious consideration. I have such rage - people have no idea.

Oh crap, positive stuff. Er........... I got 24 6MP pills today! :| 24 is a bizarre number, but better than 7 at least, which is all I was getting before. I also got a really nice new lamp for my living room. I had a nice lunch too. Amusing hospital experiences - mind is coming up blank at the moment, but I'll get back to you on that one. Have just thought of one thing: during a hospital stay a few years ago, I saw a doctor who was named Dr. Butt. I was in the gastroenterology ward which made it even better.

<hugs>

I just got back from vacation last night, and am so happy that I was able to enjoy myself with minimal GI issues. I feel like it's been a rough spring with flaring, and getting shingles and having to delay treatment. So it was particularly lovely to be able to enjoy vacation. I never thought I'd actually be happy to be on prednisone.

Again thanking everyone for your comments I am reading them, appreciate them and have something to say to each of you but my body aches are a bit overwhelming tonight, I haven't had them in a long time but they have been slowly been sneaking back this last week ( think that's why I got so overwhelmed the other day, I hadn't even realized fully that this was sneaking up on me) and now started with chills yesterday and I have a fever of about 99.8 for the last two days when it's usually 97. Not sure yet what's up or wether I should be concerned since its by too high but it sure feels like it is, but planning to just vegetate tonight and call my doctor tomorrow. I know it will get better just another bump:)

Post Edited (Labradorite) : 7/17/2016 7:24:36 PM (GMT-6)

Not health related, but my husband got accepted into graduate school today!!

When I first got crohns I was working and I was always embarrassed with the bathroom issues. It was a private bathroom but odor and frequency was my issue. Then I worked from home or didn't work, so had the freedom from this early humiliation. Just recently started working again. Now 6 months into the job, I am flaring. Whenever I walk into the restroom, with several stalls, I say thank you Lord when it is empty. But smile as I realize how far I've come. I'd never believe that I could "fart" with another human being near me. And let's just say, they aren't "normal" noises. That's the embarrassing part. I'm not sure if you know what I mean, or have this issue, but I have mucous and gas, and it makes such crazy noises. sorry TMI. That's my hospital story....because I work in a hospital. :) Have a great weekend everyone!

Hi Labradorite!!

I have raised over 1500 dollars of donation for CAMP SUNSHINE with my cafe!!! WOOHOOO

Who says our health issue's a waste of time??? HUH??
They won't be able to understand what we're going through. That's why we all gotta take care of each other in every way possible.

As my joints are still achy this could take me several posts but I'm going to work my way backwards and respond to everybody !! 😀

Sukay: nothing like new underwear😆... I once got a set that I really liked but it included one pair that was a hideous yellow. i put it to the back of my drawer and considered it an emergency pair. Well one day this spring I had been running back and forth to the hospital to visit my mother and hadn't had time to do laundry so I finally decided to put the fluorescent pair to use, thinking as I got them out "naw I would get sick today and need the ER"...yeah...I got symptoms of my PE back that day and my doc ordered me to go to the ER and I had to change into the gown in front of the nurse and guy doing the ekg. Sporting my eye catching underwear😳sure they've seen worse though

Tropitude: that's fantastic!!! This disease can change the way we live our lives in many ways but it does not and should not be allowed to extinguish our potential and ability to do amazing things!

DinkyDee, I am so happy for your progress😊 I completely understand, one of my earliest problems with crohns I had was before I even knew that's what it was and was issues with extreme gas and pain that went along with the cramping and D. I had to let it out Because the pain became unbearable. This often hit me when I was in stores or work or pretty much anywhere where finding privacy would be hard. I also hated dealing with stall bathrooms or even private ones when you knew some one else would be using it soon after. It took me a long time be able to get to a point where I am comfortable in public restrooms. But then I got to the point where Irecognize I have to do what I have to do and I just make sure I'm the last one out so hopefully nobody sees me😆.

Pinky4Life: Yay! That's wonderful! Hope your weaning down is successful!

Scifigal2k: Congratulations to you and your husband!! That's awesome! What will he be studying? Wishing him much success with it!

...to be continued..,