Posted 8/10/2016 4:45 PM (GMT 0)
I felt terrific the first five days but then symptoms returned and I was on it for 6 months at 9 mg and 3 months at 3 mg. I have given my doctors feedback that they didn't monitor inflammation levels or they would have realized the budesonide wasn't working. Your doctor can order a calpractin test from a stool sample and it measures how much inflammation is in the bowel--more specific to IBD than a C-Reactive Protein test.
And the problem my doctors did not address was that my disease was progressing, with increased scarring in the Ilium and Cecum, leading to sepsis and septic shock--exacerbated by taking an immune suppressant drug.
So, the problem isn't just the diarrhea. The consequences of sepsis are life threatening and doctors are not warning Crohn's patients of this possibility.