Is no news good news?

My Dr. did the same thing to me and then it was a month out before I was to see him! I got one call about blood work, which they told me were all normal (that white count is where I was worried because I think it would be off if it had been the big "C"). But I had to go in to see the Dr. which was just him telling me he wanted to do another test. It's so difficult to NOT worry when it's so important to you, but try to tell yourself it's just the next step in determining treatment. I was in your same situation in September, and now I'm just on to the next form of medicine. I don't know your history as this is my first post. Do you already have a diagnoses?

Heidi

If they found something life threatening or something hugely concerning, they would most likely raise your priority and tell you (or bring you in) earlier. So you're probably OK in that sense.

But if they found nothing, or found something like evidence of Crohn's, then they may not tell you until your appointment, when they can explain it in more detail.

nope, some docs/facilities have a policy that they dont give over anything on the phone because certain things are best said in person. hard to draw the line. would also make patient apprehensive if they are usually not called in and suddenly called in.
if it was emergenct that might be a different story

good luck!!

I have no idea how many tests I had before dx. Maybe 3 plus several medications and office visits. I went 3 years trying to convince my mom and a few doctors before I found a good one. Once I was diagnosed, I've had more colonoscopies than I can count, but recently had a CT enteroclysis that showed I have 4.4 cm of something where I was resected. They already know I have Crohn's of course, but my Dr. can't tell if he's looking at inflammation or strictures. He saw an ulcer for sure in what's left of my colon but that was during the colonoscopy.

NiceCupOfTea said...

Snazzycazzy said...
Ahh thank you all for responding! Soo its just a waiting game then! May I ask how many tests you all had to have before you got a diagnoses? And did anyone have a CT that picked up crohns? After everything else come back normal? Even my bloods are showing up fine...x

Yep. Even after diagosis it's a waiting game, tbh, since the need for tests doesn't end there.

The time and number of tests taken to reach a diagnosis varies massively. I was one of the lucky ones in that respect. I had a colonosocopy and small bowel barium follow-through, then got a Crohn's diagnosis. It took a few months in total, from the first time I went to see my GP to receiving the diagnosis.

I'm not sure what your symptoms are, but it was a shame you didn't have a colonoscopy instead of a flex sig. You might end up having to have one anyway. CT scans are good for spotting strictures (narrowings) and thickened bowel walls, but might miss more subtle signs of inflammation, such as shallow ulcers or whatever.

Blood results are fine in some people unfortunately, even with active disease. The faecal calprotectin test is more accurate for measuring inflammation in the stool. Ask your consultant about having a faecal calprotectin test next time you see them.

Hello well basically ive had issues with bowel movements most of my life. But back in july i ended up in A&E due too lower right sided pain, diarrhoea and dark blood. At first they gave me a ultrasound which come back clear. But then the consultant at the hospital told me im going too need a colonoscopy. I waited a couple of weeks an my referral letter arrived and it said flexible sigmoidoscopy...even though the doct in the hosp told me he referred me for a colonoscopy. (due too family history also - My mum has partially prolapsed bowel. My nan had diverticulitis and my other nan had bowel cancer.) Anyways me thinking it would be easier went ahead with the sigmoidoscopy, which come back normal also. I then went for my follow up appt and explained i was still getting blood in stool and diarrhoea and right sided pain that now moves about all over the place. But mainly in the right side. And due too me suffering heartburn a lot he wanted me too have a gastroscopy and colonoscopy. I then rung my consultant a few days later saying i felt uncomfortable with having both procedures done at the same time soo he cancelled the colonoscopy and told me that hes going too book me in for a CT Colonography. Which too my surprise was actually more painful and had too stop because the air they where pumping me up with was just far too painful...so they ended up just doing a CT thorax, abdomen and pelvis. I did go ahead with the gastroscopy and everything was normal except they found a 3cm hiatus hernia (which explains the heartburn) Soo its just a waiting game now for CT scan results...i do worry that they will call me in too have a colonoscopy next...and if i cant even bare the pain of CT colonography how the hell am i going too have a colonoscopy done lol

Heidi4ever said...
I have no idea how many tests I had before dx. Maybe 3 plus several medications and office visits. I went 3 years trying to convince my mom and a few doctors before I found a good one. Once I was diagnosed, I've had more colonoscopies than I can count, but recently had a CT enteroclysis that showed I have 4.4 cm of something where I was resected. They already know I have Crohn's of course, but my Dr. can't tell if he's looking at inflammation or strictures. He saw an ulcer for sure in what's left of my colon but that was during the colonoscopy.

Blimmy you've been through it by the sounds of it! I hope you get your answers soon and i hope you feel better soon <3 x

Ok so just and update...had my follow up appt for ct scan results!! No sign of crohns...phew. But they did find a 5.3cm ovarian cyst...which explains the pain and certain symptoms...doesnt explain blood in stool but he did say too come back and tell gp if that gets any worse or low iron shows up on my bloods. Thank you all for your replies from thought id update you all! 😊

Yes fingers crossed this will all settle itself down 😊 and yes will defo be opting for colonoscopy if this continues or gets worse. And thank you 😊