Does anyone have a hospital they LIKE?!

Because I will move there. I'm serious. I am so, so done with this. I am tired of ER doctors who don't believe me because I'm not a textbook case. And I'm sick to death of playing telephone between my nurses and doctors and communication just not happening.

My WBC hit 16 and my neutrophils were extremely high, so I started the Cipro and Flagyl Tues night. Within 12 hours I was so nauseated and sick that every time I ate or drank, I immediately threw up. After doing that until Friday morning while STILL having a fever off and on of 101+, both the nurses for my PCP AND my GI said I should go to the ER to get IV antibiotics and be admitted.

I spent 8 hours at the ER with this smug jerk who told me that BOTH the PCP and GI themselves said that they never intended for me to be admitted and that I just should get fluids and go home. My WBC was back to normal and since my blood sugar level was supposedly okay, I didn't need nutrients/sugar in my IV. I also was not allowed any IV nausea medication and given oral phenergan and dilaudid, which did NOTHING. I feel like my GI stabbed me in the back. I told the ER doctor that if I went home and continued the abx, I would just be back again in a few days. He gave me a suppository for phenergan, which I said I couldn't to because of my RB fistula not being healed. He told me that it wouldn't stop healing (which wasn't the point).

So I came home, tried to eat, threw up, and decided to just throw away the abx. My body will either get better on its own or I'll just get a super bad infection and maybe they'll decide to take me seriously. Either way, I quit.

Part of my anger is both the GI and PCP nurses said I absolutely could not wait until Saturday or even Friday night when my husband would be home from his business trip and could stay with the kids. My 7mo won't eat or sleep for anyone but my husband or me, not even for my mom. So understanding that I needed to be admitted and couldn't wait, my husband spent several hundred dollars to fly back early and missed an entire day of work. All for me to sit for 8 hours, no functioning meds, and then turn around and go home.

I still have a fever off and on, but I feel much better since I can now keep things down. I still feel crummy, though, like how it was before starting the abx. But I refuse, I utterly refuse to do that again.

Yes, but it's in the UK so that doesn't help you :-(

If the nurses were so insistent you couldn't wait, then I'm wondering if the ER doc was even telling the truth about what your GI/PCP said - unless he spoke to them directly, how would he know what their intentions were? It seems to me the nurses would have been more likely to speak to your GI/PCP than your ER doc.

At any rate, I hope you can find a better hospital :-/

Edit: Actually "like" is too strong a word. Nobody can like being in hospital. But I've been very lucky with my current GI, IBD nurses, and surgeon. Even the ER in the past has been decent - whether it still is, I don't know.

I have only had good experiences, my GI makes sure that the orders are at the hospital to admit me and we have a plan. Then they send me upstairs to the GI ward.

Onetime after my surgery I ended up with a blockage and needed to go to the ER which was unplanned, that was a disaster just waiting to get into the ER.

labradorite,

I drive 1.5 hours too to go to a hospital in NYC, but the quality of care is worth it.

There's usually a better trained staff with more resources at the University/Teaching hospitals. They see the toughest cases that the local hospitals aren't experienced with or have the resources to treat.

I use to go to Mount Sinai but now I go to NYP Cornell because my GI moved there. My first hospital stay I stayed at a local hospital and they just made everything worse until I requested a transfer to the teaching hospital were they got me fixed up.

So sorry you have to deal with all that!
I hate hospitals, period.
Since you are so nauseated, how about just taking the Cipro and not the flagyl? Flagyl made me so sick but I could tolerate the cipro fine but I always added florastor to prevent c-diff.

I hope you feel better soon !

Thanks everyone, I appreciate it a lot. I still am feeling kind of betrayed. I've always really liked this ER, but the last 3-4 visits have been bad like this. I'm being treated like a hypochondriac drug seeker - they sent me a letter after the previous visit that I won't get any narcotics at all unless my doctors call in and order them. Which is what I've always done in the first place! So to have the ER doctor say that both doctors said they never said I should be admitted, which is what the nurses said, made me look even worse.

My PCP and my GI's office both said to keep an eye on my temp and if by today I still had a fever, to try Cipro without the Flagyl. Problem is, by the time they said that the garbage truck took the meds away and I'm kind of embarrassed to call. But I've been on Cipro before and it made me feel pretty sick the last time, too.

Had several bouts of D yesterday, the last one with a bunch of mucous and a bit of blood (though that could be from hemmies) and then awful stomach pain till late into the night. Temp is down a bit, it will be in the 98s at times, but this morning was about 102 for an hour or so. So it seems to slowly be getting better. I'm hoping the D is just leftovers still from the antibiotics. Haven't been able to have a BM all morning, even though I feel the pressure of it.

Augmentin causes terrible D for me. As a matter of fact, I was taking Augmentin for tonsillitis just before I was diagnosed with Crohn's, and Cipro used to be a great drug until I took it and it caused c.diff. With your c.diff history, I can see why you are worried. But 102 is really a high fever. I'm concerned about what is going on with you!

Spoke too soon.....back up to 101.7 this morning. DANG IT!!

@Labrodite, I know, I just can't get the doctors to take me seriously. The fevers tend to happen more in the mornings, but the chills I get are pretty random. Even when I don't have a "fever" I'm still in the 99s the majority of the time. My normal has always been in the 97s, and I don't get fevers hardly ever, even with influenza or abscesses. But every time I have seen the doctor in person, I haven't had a fever right then. So I started taking my kids' temps every time I take mine, and they're ALWAYS normal - the odds of it being JUST me every single time because of a broken thermometer is too ridiculous at this point. I have an appt with my GI at the beginning of December. I don't have any other Crohn's symptoms at all except for alternating D and C, but that started when I started the antibiotics so I think it's more from that.

I have the same reaction to antibiotics now. :( I have stopped taking them for the exact same reason. I waited this cough out for the past month because I don't want to go on them unless I absolutely have to. I'm sure they would have put me on something and I think it was all just viral anyway.

As for hospitals, I liked the the hospital where we used to live at first. I got really good care. But then it went downhill. They also didn't believe me most of the time, thought I was just seeking pain meds. They'd take in kids with ear infections, drunk guy that was puking in the waiting room, and just let me sit there for 5 hours in the waiting room because I was obviously just faking. Even though I'd be doubled over in pain and throwing up and having accident after accident on myself. They also let me walk out of the ER when I had pancreatitis, because I just couldn't wait anymore in that kind of pain and fainted on the side walk. They ran out and started hitting me where my pancreas/lower chest area was because they thought I was faking it! The last time I was hospitalized they also refused to give me meds in my IV. Only oral, even though I said it won't help I won't be able to keep them down and they don't work as well that way.

I'm hoping I have a better one where I live now, but I'm not all that hopeful. Seems like it's only gotten worse with them not wanting to help people in severe pain and nausea. So much fear of addicts that they don't do right by those of us who are actually sick!