Posted 12/12/2016 2:14 AM (GMT 0)
Hi everyone.
I stumbled across this forum while looking for answers about my 6 month old's symptoms and potential diagnosis. Just looking for a bit of insight if anyone has had a young child diagnosed with IBD. Here's a quick rundown of her story-
From 2 weeks old she had mucus and blood in her poo, every poo. And pretty much had diahorrea everyday. She was exclusively breastfed, so we put it down to a milk protein intolerance, as her older brother was diagnosed with it.
So after cutting out dairy, soy and gradually other allergens as well, with no change in her poo and a slight weight gain drop, we moved onto Elecare formula 10 weeks old. She developed reflux with blood in it so was put on Nexium.
We got referred to a great gastroenterologist, and she had a endoscopy and colonoscopy at 4 months old as she was also starting to drinking less formula. The initial look seemed ok, and most of the biopsies came back fine, apart from one in her left colon that showed Paneth cell metaplasia. The gastroenterologist was puzzled by this as none of the other biopsies came back with anything suspicious, so we are treating her with Flagyl for 4 weeks. A few days ago she did her first normal poo ever! I couldn't believe it! And she has started drinking more milk again.
So she hasn't had an official diagnosis yet, but I'm thinking if the Flagyl has had that much affect, then there must have been something going on in her gut that needed treating. Plus everything I've read about Paneth Cell metaplasia in the left colon points to IBD.
Has anyone had the Paneth cells come back on a biopsy, or been diagnosed at a young age?
Many thanks :)