Natural remedies ?

Hi all
New to this group... and crohns about a year ago do getting to grips with it all.
Have been on Pentasa for a year a couple of flare ups recent due to stress at work has forced me to go on pred which I really don't enjoy! The anxiety which I suffer from and insomnia has driven me and my family bonkers!

I tried Budenoside which hasn't worked so back on pred again for 6 weeks. Just wondered what anyone has used that has helped them that's not a drug! I bought coconut oil kefir and slippery elm this week out of desperation to control my symptoms and not get worse. Anyone have any ideas? Would love to hear them! Thanks guys. X

The only somewhat close to success that I've heard of is the Simple Carbohydrate Diet. But you're on Pentasa, so no wonder you keep flaring. It's really no more effective than a placebo. You need to have more effective meds.

Good god, who is this buffoon?

Right, you're so unique, you're so special, you're so clever, you've alone found the cure.

I can't be doing with this type of thinking. Particularly as unlike you I've been here for years, on both IBD boards, and have seen folks try every treatment under the sun, including activated charcoal. For every person who has claimed a "cure", nobody else has been able to replicate it.

It's not a cure if it only works for one person.

PS: You mentioned "evil" in an earlier post. You don't know what evil is.

On HW alone I managed to find one news article and several old threads debunking the idea that activated charcoal can be used to treat IBD.

Here's the news article: Beware claims that activated charcoal can cure gut troubles

The old threads can be found by doing a site search for activated charcoal ulcerative colitis (or crohn's).

Put simply, activated charcoal is just another in the long, long line of purported "cures" that turn out to be absolutely nothing of the kind.

@crohns, sorry this thread got hijacked and turned into an argument by @curedcolitis's rudeness. I definitely DO think that it's worth exploring natural options. I've done acupuncture and chiropractic with some success. However, I don't think it's wise to rely ALL on medications OR all on natural methods. There needs to be a balance. Some people, for example, have great success with SCD. I wasn't one of them, but another member had their fistulae healed up and are in remission. Another member is in remission now and controls symptoms with diet, but in both cases, they also make sure to have regular colonoscopies (typically yearly) and aren't afraid to be on medications in the future if that's what they need. It's going to be a bit of trial and error, but please make sure that you keep in touch with your GI doctor through the whole process. Part of the reason is that a few members have had ZERO symptoms, gone in for a routine colonoscopy, and it shows that their intestines are a WRECK. That inflammation can just sit and simmer. So if you find something that's more alternative that seems to work, please just make sure you keep in touch with your GI and get regular checks.

I hate the side effects of prednisone, too. That insomnia can be so awful! And my grandpa, when he's on it, can be downright grumpy and mean when he's usually the sweetest guy. And Pentasa really is not effective with Crohn's at all. I would talk with your GI about alternate maintenance medications, if you're willing. I've been on Remicade infusions for over 5 years now with HUGE success in managing my Crohn's (once we found a good dosage).

@curedcolitis, please, be more respectful. Stop calling names, and stop pushing. You are very, very wrong - NOT every body works the same way. NOT all medications or pills or supplements will work the same way on people. Period. I am glad that you have found something that works for you, but name-calling is not going to cause anyone to listen to you. And claiming it's a cure that will work for everyone is also just going to drive people away. If you truly want to help others, you need to work on your approach.

Still waiting for CuredColitis to define "toxins" for us.

But I tend to be skeptical of science claims - and claims of cures - from somebody who repeatedly confuses "adsorb" with "absorb."

Maybe it's just me.

some people just enjoy staying in the dark

Sickening comment.

totally true @scifigal2k!

@curedcolitis you are trying to push people into your method by insinuating that those who do not follow you are a) wrong b)less intelligent ....nice

I'd like to share the news with you that we are not all clones, so good luck with the all humans are the same theory. Not only are we no the same but our delicate microbiomes are no the same either. But you listen to no reason or logic. I'd even question whether you actually had Crohn's in the first place and not a different type of colitis if you even had that. This is coming from some one who suffered through all the "natural" junk and ended up A) not being "cured" and B) gaining a lovely bunch of "fistulas" that took three year to heal with real medications. but I guess I'm just special.

I'm not saying all natural meds are bad, but if you have crohns, you should be going to your doctor and taking what's recommended for your level of disease activity and discussing with them any natural methods and whether it is safe for you.