What going on now?

Sounds like the start of a flare.

At that point, I would head to the ER. It could be as simple as irritated hemmorrhoids, but I don't think so. They can at least give you prednisone and do some stool samples and blood work.

Sorry that you have been through a lot lately. I experienced this cramping with urgency and diarrhea last week and can def relate. I thought mistakenly it was either antibiotic-associated d or even c.difficlie. It turned out to be a flare up. I'd assume it's the beginning of a flare up for you, too. As for the blood, I think d is causing it and these are irritated hemmies. Try to go to the ER as you can't wait till you see your new GI. Hope you feel better soon.

That sucks Bucko. The two times I've gone to the ER for severe abdominal pain, it was because of severe constipation. Both times, I was going multiple times a day so I was quite surprised. Daily Miralax has helped in the past to get things moving without being too hard (although 3-4 capfuls would be too much for me--more than two causes a lot of cramping and pain).

I think you definitely need to a see a rheumy. And your old GI is, again, a moron. If there is inflammation, you are NOT in remission just because it's "the same." That's like breaking your leg and then three weeks later saying it's healed because the break is still in the same place and hasn't changed.

Bucko said...
Well i went to the ER. I just couldnt take the pain any longer. After waiting 4 hours i was finally called back. They immediately gave me pain meds, dilaudid, and put in orders for a CT scan. The CT scan showed chronic inflammation which has caused a lot of feces to back up in the small intestine. Which is causing pain. However ive been having major watery D. So how am i backed up. The dr wants me to take 3 to 4 capfuls of miralax a day and do enemas. The D that i have is already irritating the hemmies and causing them to bleed. Now taking all that miralax is gonna make it worse. Also the dr said to call and see if i can be seen by new gi dr sooner than march 23rd.

It's called overflow diarrhoea. As the constipation worsens, the faeces become hard and impacted but liquid stool from higher up the bowel passes around the impaction and leaks out.

The constipation was most likely responsible for your severe pain, but the chronic inflammation needs to be treated. You cannot have inflammation and still be in remission!

Honestly i dont feel any better. Im taking 2 capfuls 3xs a day and all that is passi g is orange very watery stool. Theres no solid matter thats stuck coming out. My watery poo also has no oder. I still have a lot of pain. I called my new gi clinic and theres no appts available before my scheduled one on mar 23rd. I left a message with my pcp for a referral to see a rheumatologist. I should here about that next week.

Buck,

I agree with NCOT. If I was still miserable on Sunday....Monday morning I would start calling. I would talk to anyone and everyone multiple times and get in ASAP.

Please keep us updated.

I hope you feel better soon.

Clo

AGH! yes, I actually can believe that to some extent. Rheumatologists are the hardest doctors for me to get appointments with. Still though, that is outrageously long wait time. I had a similar issue at my former GI's office when i asked for a referral to a PCP that he worked with frequently. He said he sent many of his patients to her and she could help put my situation together. I called to get an appointment and they said there was nothing for 6 months. I said okay, I need one now but I will get by somehow until then. Their response? sorry we don't make appointments that far in advance! so yeah I know the frustration

Waiting times have gotten a LOT longer since Obamacare. This is NOT a knock on Obamacare, etc., because I believe that healthcare should be something everyone has equal access to. So I do NOT want this to be political. All it is is the indisputable fact that with Obamacare, we had thousands and thousands of people suddenly have health insurance and be able to start going to doctors (which is great). However, we did not have the same infux in doctors! And a lot of doctors left practicing because they couldn't afford the rates the government worked out with Obamacare. So with more patients and fewer doctors, they're just getting so incredibly overwhelmed and busy.

I am sorry to hear all you have been going through! And I cannot believe that you could be in remission with inflammation. My limited understanding from my son's GI is that ANY inflammation for ANY reason (he has post operative non specific anastomotic inflammation) means he is not in remission, and that is despite him not having any "spots" of Crohn's! Have you ever checked into remistart? That is program through Janssen CarePath and has paid towards my son's remicade. We have incredible insurance and would most likely not meet financial limits and yet his GI clinic enrolled him. Maybe worth checking out? Best to you!

Ok i think i got enough miralax in me to get things moving again cause this morning (sorry tmi) when i pooped out came peas whole that i had for dinner the night before. Well explain this how come im still having pain in the LRQ? Whenever i eat i feel very full very fast and then im bloated for like 2 hours. Im having a breath test on march 2nd to see if i have SIBO.