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Posted 4/7/2017 12:49 PM (GMT 0)
Hi everyone "again"

I've just received a letter "an update to my gp" and it States non-tender abdomen on examination and marked hepatitis on proctoscopy. Wat does this mean? No-one said anything about hepatitis. First I had infection then crohns and now they think it's an infection afain and said I got or had hepatitis which I wasn't told about. It don't even state wat type it is. My friend said there's no cure for hepatitis. It will keep coming bk and could really affect my liver. I can't remember doing a blood test for hepatitis or anything and I'd I have hepatitis does it resolve on its own? I can't understand how they can diagnose hepatitis from a prpctoscpy?
Posted 4/7/2017 12:52 PM (GMT 0)
It also says its acute terminal ileitis including infectious ileitis or crohns disease
Posted 4/7/2017 1:11 PM (GMT 0)
Can you copy exactly what was written in the letter? I don't see how hepatitis can be diagnosed from a proctoscopy either.
Posted 4/7/2017 2:08 PM (GMT 0)
Hey yeah sure. Ill read exactly wat it says.

She has family history of bowel cancer.
She had a soft, non-tender abdomen on examination and marked hepatitis on proctoscopy. Indeed she went onto have a colonoscopy, which was reported as Small bowel inflammation and biopsy reported as acute terminal ileitis inc infectious ileitis or crohns
I shall not arrange any further surgical appts and appt sent out from gastroenterologist

This is from the academic surgical unit. I was first referred to the Colo rectal team and then refererd to ibd consultant
Posted 4/7/2017 2:26 PM (GMT 0)
I'm genuinely baffled. I'm wondering if the hepatitis part is a mistake and they meant to say something else. Take the report with you and ask about it when you next see your consultant.
Posted 4/7/2017 2:50 PM (GMT 0)
Yeah me too. I see him in a few months I think so I'll ask him. Its these kind of mistakes that make some one worry. I've got my partner wondering if I have hepatitis! I even thought that they put hepatitis as another word for inflammation. I'll stop Worrying now cause that don't seem rite. Thanks
Posted 4/7/2017 9:09 PM (GMT 0)

NiceCupOfTea said...
I'm genuinely baffled. I'm wondering if the hepatitis part is a mistake and they meant to say something else. Take the report with you and ask about it when you next see your consultant.

I agree - it's probably a mistaken word. I'm not sure how it works in the UK, but I know in the US, sometimes the doctor literally records his/her thoughts into a voice recorder, and then that is typed up by somebody who may have no medical knowledge whatsoever. That happened with my records in the hospital once, and the records were so full of errors it was comical.

As for hepatitis, if I remember right, hep A is more common, makes you pretty sick for a couple of weeks, but is a self-limited illness that gets cleared. Hep B and C are the chronic ones that keep coming back and can damage the liver. You would need blood tests and liver tests to know if you had hepatitis and if so, which type.
Posted 4/7/2017 9:14 PM (GMT 0)
Agree w others it could be a mistake. I think that since you had a proctoscopy and since you don't remember you had a hepatitis blood test, so most probably it's proctitis and not hepatitis. Hope you get an answer soon
Posted 4/8/2017 7:53 AM (GMT 0)
Thanks for your replies. I'm sure my consultant would of said and would of ordered a blood test for hepatitis if this is wat I had. I did have a full blood count but not for hepatitis. They really should check medical letters before their sent out.
Posted 4/8/2017 12:26 PM (GMT 0)
If you start a biologic, you will get screened for hepatitis. But you haven't had a diagnosis yet, let alone begun the process of starting a biologic. I'm sure it was a mistake.
Posted 4/8/2017 7:40 PM (GMT 0)
Thanks nice cup of tea. You've been very helpful. I'm considering joining a crohns group that have meet ups. This forum is great but feel Alone with this. Be nice to meet people with the same disease as I'm quite sure this is wat I have. I so much appreciate all your advice xx
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