Is everyday colon tingling normal with crohn’s?

hello ? no one able to give me a quick answer ?

spasms mate, it just doesn't go away without medication it is just so annoying

Spasms aren't remotely like tingling... I dunno. I get a lot of cramping and it is horrible, I admit. You could try an antispasmodic such as Bentyl - ask your doctor to prescribe you one.

Diet might help.

Sorry to be so vague - it really is different for everybody :/ Some people don't have any symptoms in remission, but it is pretty common for people to still have IBS-like symptoms even in remission (particularly after bowel surgery). Sometimes symptoms can settle down - they're not always permanent. In the meantime, all you can really do is try to find ways of managing them. Diet is one possible way - if you think a particular food gives you worse symptoms, try cutting it out for a while.

Stuff like herbal tea (or, for me, ordinary tea) or a heating pad applied to your stomach can be soothing. Lying on your side on a hard floor can help to shift stuck gas. Eventually you will find some methods to help you deal with your symptoms, and perhaps even drastically reduce them. But for now, try not to get overly stressed, as that won't help either :/

I think there are too many doctors who don't care, that's the problem. Even if nothing can be done, it still helps to have somebody who takes you seriously and empathises with you. Telling you should be thankful because your Crohn's is mild isn't helpful - just because somebody has it worse than you doesn't mean that you aren't suffering. Telling you to be thankful is just another way of not listening to you properly.

I was gonna suggest looking for a doctor beyond your town, but maybe best to leave it for a while. Your medical notes will travel with you, and it's better to avoid a reputation for 'doctor-shopping'. If in the future symptoms get worse and your local doctors are still useless, that will be the time to consider going further afield. But for now, there's not much even a really experienced and competent doctor could do, to be honest.

Good luck with the diet experimentation. Perhaps to make it simpler you could try a gluten-free diet for a few weeks, then, if that doesn't help, a dairy-free diet for a few weeks, etc. Best not to cut out multiple food groups at a time, unless you're desperate.

Raffi, consider keeping a food diary to see if any one thing seems to set this off. It may sound boring but at least you can track your food intake better.

Take care.

Hello again, I just want to point out something I noticed lately, that my cramps are usually happening 95% of the time while I'm sitting and rested is there anything I can understand from this situation or that's just normal. I'm really desperate to stop it 😌