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Crohn's Disease
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Posted 11/23/2017 3:51 AM (GMT 0)
Hey guys! I am new here and was wondering how you guys were diagnosed. I am undiagnosed at the moment but have a strong feeling I have crohn's.

about 6 months ago I had an episode of not being able to keep anything down. At random times I would get a sharp pain in my lower right side
of my stomach and vomit. I went to the ER and they concluded a gastro problem and to see my regular doctor for a referral to a GI. After about a week all my symptoms stopped (I had bloody stool also) and so I chalked it up to a random thing and left it alone.

Well then 2 months later it came back and was worse lasted a week and a half and then I was fine. And then 2 weeks ago it returned again. This was the point where I decided to finally do something about it.

Last week I went to my doctor about it and she gave me a percription for nausea medicine that doesn't work and ordered tests. All my blood samples came back normal and so did my regular X-Ray and stool. I have a follow up with her on Monday. And I was wondering if it's possible to still have crohns with those tests being normal. Also is there any tests that I should make sure I get? I feel like my doctor is at the point of saying nothing is wrong when I clearly know there is. Thanks a bunch!
Posted 11/23/2017 7:50 AM (GMT 0)
Did you ever go to a GI? A colonoscopy is the only way to definitively make a diagnosis. Some people have more trouble than others with Crohns showing up in tests. I had several likely flares years before the disease got bad enough that I got a colonoscopy to figure out what was causing the symptoms and at that point it showed up in blood work and ct scans. During those likely earlier flares I had had numerous tests but nothing ever showed up. So no one can really say until you speak to a GI. Even if it's not crohns there are other things that could probably cause your symptoms and should be evaluated.
Posted 11/23/2017 10:24 AM (GMT 0)
I have tried getting in with a GI but it required s a referral from my doctor. So I pretty much have to convince my family doctor that I need to go.
Posted 11/23/2017 5:44 PM (GMT 0)
The GI is the only one who can give you answers. If the PCP is that unwilling to give you a referral than it sounds like you need to seek a second opinion from another pcp.
Posted 11/24/2017 5:32 PM (GMT 0)
My experience sounds somewhat like yours. I had extreme stomach pain and vomiting one night and ended up in the emergency room. Spent a day in the hospital doing all sorts of test and came up with nothing. Over the next few years saw my primary doctor several times to complain about fatigue and stomach pain but nothing could be found. Then I started loosing weight (25 lbs in about six weeks) so doctor ordered more tests still finding nothing. Finally had a colonoscopy and that is when they determined I had Crohns.
Posted 11/27/2017 3:06 PM (GMT 0)
Emergency appendectomy. I presented with intermittent lower right quadrant pain and diarrhea. Had a "nervous" stomach since I was a teenager. CT scan showed what was thought to be a ruptured appendix. Once they got in there they saw it was actually an abscess on my small bowel and diagnosed me with Crohn's.

Colonoscopy would have been a lot easier smile
Posted Yesterday 8:33 AM (GMT 0)
had a fistula and it popped. did a barium xray and that was it. 1 week to diagnose.
Posted Yesterday 9:49 PM (GMT 0)
I had stomach upsets for 20 years. My family dr. Diagnosed me with "inflammation of the intestines" after seeing results of an upper g.i. Procedure in 1980. Prescribed Bentyl, flagyl, and mild tranquilizer as needed, told me to drink mylanta and milk and avoid spicy foods. Several years of pain, vomiting, diarrhea, more tests with no significant answers.
Nearly 20 years later I was having nightly fevers, vomiting, bleeding. Ate a big bowl of popcorn one saturday afternoon and ended up in e.r. With partial bowel instruction. Had X-rays and ultimately colonoscopy that finally diagnosed me with crohns. I have been on pentasa since with only one other hospitalization because of chronic fever from inflammation, a couple of bouts of steroids, but all in all doing well.

Post Edited (ragbag) : 12/1/2017 2:55:44 PM (GMT-7)

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