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Crohn's Disease
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Posted 11/28/2017 11:53 AM (GMT 0)
I have had Crohn’s disease for over 30 yrs. I have tried to manage it as best as I can but have not been able to enter in a relationship because I have uncontrollable gas. It causes great anxiety and as I am older I really prefer to be on my own. No way to live really. Moving forward does anyone know what works to control flatulence. It is so frustrating and embarrassing. Help please.
Posted 11/28/2017 12:43 PM (GMT 0)
Not sure that I have any answers for you. Have you consulted your GI or Doctor or even a nutritionist regarding this problem?

It could possibly turn out that it's more food related than Crohn's related. I do know that there are products on the market you could try, like Gas-X. I believe the main ingredient in this and others is simethicone. Not sure if there's a prescription strength.

Hopefully you'll be able to address the problem.
Posted 11/28/2017 1:55 PM (GMT 0)
Thank you for your reply. I wish it would be that simple. I have consulted them many times over the years. Not much help. Tell me it’s food related. So sorry for your daughter. If I can be there for her, let me know.
Posted 11/28/2017 2:13 PM (GMT 0)
* Have you had flatulence even before you had Crohn's Disease? Is this condition hereditary? Could this be IBS related?
* Is there any food or beverage which would make flatulence worse?
* Do you have strictures and related Small Intestinal Bacteria Overgrowth (SIBO)? Have you had Crohn's related surgery?
* Do you have much less gas when you have diarrhea? Do you have constipation?
* Do you have Crohn's in your large bowel or rectum that might cause fecal incontinence?


There are a lot of unanswered questions that you might want to ask yourself or your doctor. You should ask your GI what caused this flatulence.
Posted 11/28/2017 2:36 PM (GMT 0)
1. No it started after Crohn’s
2. No food or beverage makes it worse.
3. No surgery and no strictures that I know of
4. Not related to diarrhea
5. Have discussed it many times with GI
6. Claims its food related
7. Don’t know
8. Crohn’s affected my bowels somehow due to this disease
Posted 11/28/2017 2:55 PM (GMT 0)
Do you mostly have diarrhea or constipation on a daily basis? Or do you have perfect bowel movements every day? Diarrhea usually cleans out a lot of things and would stop the gas. How many times do you have to pass gas on a daily basis?


Have you had a colonoscopy recently where the doctor found something abnormal in your bowel? Inflammation in the large bowel is another thing I am thinking about.
Posted 11/28/2017 3:13 PM (GMT 0)
This probably doesn't help you.But I also have severe gas problems.Some times I wonder do these liters of gases do some harm to our intestines.Also I have severe anxiety issues.This can cause me to have much more gas.So anxiety doesn't help it probably causes more gas.

Also if the gas don't get out regularly every day more or less I feel my lower abdomen feels its heavy or feel pressure at that region of abdomen.I am not sure how to describe it in any other way.
Posted 11/28/2017 3:59 PM (GMT 0)
What chinese herbs are you taking and has it helped. Bowel movements are good and colonoscopy shows some scar tissue but otherwise no concerns.. Don’t know
Posted 11/28/2017 4:48 PM (GMT 0)
I have something called Crohn's ileocolitis when I was diagnosed. The herbal liquid I drink consists of some 16 different herbs, which helped me avoid surgery and any western medicine (I took Pentasa many years ago and then I stopped because it didn't help). I also has lots of gas, but the gas is controllable. You have Crohn's for 30 years and no surgery, no strictures and no other complications. You are lucky that your symptoms are milder than others. Gas, I know, can be bad and embarrassing. But it is better than suffering from the excruciating pain and diarrhea all day long.
Posted 11/28/2017 6:50 PM (GMT 0)
Yes I know. Thank you for your kind words. I am very blessed
Posted 11/28/2017 10:59 PM (GMT 0)
Have you ever considered a food allergy test? You might find certain food sensitivity that might improve things when avoided.
Posted 11/29/2017 5:23 AM (GMT 0)
As EruditePaul asked, have you been tested for SIBO?

Have you looked into FODMAPs and avoiding them? (Certainly doesn't work for everybody, but works for some people.)

https://en.wikipedia.org/wiki/FODMAP
Posted 11/29/2017 11:11 AM (GMT 0)
I have tried the Fodmap diet. Really wasn’t worth it for me. What does SIBO stand for?
Posted 11/29/2017 8:08 PM (GMT 0)
Small Intestine Bacterial Overgrowth. SIBO is an excess of bacteria in the small bowel and excessive gas can be one of the symptoms. It's fairly easy to get tested for; a course of antibiotics is usually the treatment. A high quality probiotic might help as well, but probiotics can be hit and miss - what works for one person can produce worse symptoms in another, so you might have to experiment with different strains.
Posted 11/29/2017 9:26 PM (GMT 0)
Hi, I agree with the other post to go and have some food allergy tests done. Because I have a lot of food allergies I know how they can affect people.

Have a look online for your nearest NAET practitioner, they might be able to help you.

https://www.naet.com/about/what-is-naet
Posted 11/29/2017 10:00 PM (GMT 0)
Food allergy tests are notoriously unreliable. They are not to be trusted.

The only way to know is to do elimination diets. But when the symptom is gas, there are still too many uncontrolled variables.
Posted Yesterday 3:06 PM (GMT 0)
Kudos to you for bringing up the subject of embarrassing flatulence. A topic most people with Crohn's struggle with and just don't talk about.

One time my wonderful husband came home embarrassed and humiliated by a flatulence-incident in the restroom at a sporting event. As my husband was using the facilities, he could hear some guy comment about the odor being so awful that he just couldn't stay in that restroom.

AND kudos to your GI for even mentioning that flatulence could be food related. Especially impressive because their medical training does not include much about food/nutrition and most of those in the medical field never make the connection between food and symptoms.

From the perspective of nutritional deficiencies and toxicities, many factors can contribute to flatulence. One example is aluminum toxicity. Sources of aluminum include medicines, water, table salt, baked goods, aluminum cookware, beverages in aluminum cans to name a few. Another example, sugars and carbs feed yeast in the gut and yeast produces a lot of gas.

This really surprised me ... one sign that nutritional deficiencies and toxicities have been successfully resolved is there is no more or very little gas AND stools have no odor!
Posted 12/3/2017 12:28 PM (GMT 0)
Things that make me fart!

Coffee - is the biggest for me. White sugar. Dairy..... But I agree NCOT, SIBO could be a big deal in everyone's life, even people without Crohn's.

SIBO, could be caused by that go to food, like potato chips. Once that bacteria starts to grow and multiply, it screams out "feed me". Then we shove more chips in our bodies and then they multiply more.

I am not saying diet cures, but overeating, I find can cause a lot of pain.
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