Calprotectin result still not back but referred after 10yrs ibs dx

Hi I’m after some advice could just be my anxiety on overdrive here - I’m female 37 I used to be overweight with PCOS and endometriosis at 28 life got stressful I dropped to underweight with anxiety panicking attacks and severe bowel issues mainly not being able to control when I go - now I cycle between that and severe constipation severe lower back ache and bad nausea wind and when constipated I wake up throw up what I ate the day before more or less as I ate it

I’ve had anemia since an unexplained still birth 4yrs ago treated with iron and folate st various times despite this my b12 is still dropping
My cortisol was low when tested last yr then border line on synscthdn I feel cold and exhausted most days I have night sweats which meant they gave me a total hysto and all my symptoms have continued

They’ve found thyroid nodules and a pineal cyst which they are monitoring but basically so far blaming everything on anxiety I’ve bever had stool tests or colonoscopy etc my grandad died of colon cancer young and my dad has Barrett’s esophegus - all my pregnancies have been terrible small babies severe sickness and dehydration

I was told to do the stool samples sent them both off gp uk said would take 3 weeks make an appointment he knows I’m anxious went in he said it’s not back but referring me why would it not be back would he lie to me or is he not allowed - he said he was testing for inflammation would me specifically asking what my calprotectin was make him not tell me in case I google? I’ve been having memory cognitive issues too that Neuro said is migraine put me on topamax feel cold and shivery all the time just want to know what’s wrong with me sometimes struggle to swallow too but that might be my thyroid thanks

Edit justcbeen reading about fistulas - what if u think one of these is a giant spot that won’t go away and u dig it out yourself over weeks til it eventually sort of goes awY???

Post Edited (Catandco) : 3/16/2018 12:30:30 PM (GMT-6)

You need to be seen by gastro & have upper & lower scopes done along with biopsy’s to get a proper diagnosis. A calprotectin test alone is not enough to diagnose a person. Hopefully they are checking for infections & other pathogens too.

You have many different symptoms but without the above testing there is way of knowing what is going on. Truthfully I would stay off of Dr Google as he is rarely right. Too many conditions have symptoms that mimic each other & surfing the net just is too stressful. It’s a great place to gain knowledge once a person is diagnosed with something but that’s about it.

Whatever you read about fistula is absolutely incorrect & another reason why I always say for people to stay off of Dr Google.

Hopefully you can get a proper work up to see what’s going.

Sorry that was my question he said it’s not back but he has referred me on would he not wait for result or do they take longer if they are high in general?

Thank you honestly I’m just st the point now I want some answers I’m not particularly anxious really they’ve just labelled me with that because it’s easier than getting to the bottom of what’s wrong I think - might finally be getting somewhere thanks for replying I would feel better if I knew what the calprotectin was and surely the dr wouldn’t lie - do they take longer if they are high or anything? Thanks again
Just really bugging me that it’s not back if he’s telling the truth as he said make the appointment for 3 weeks and I did

Brilliant thank you that’s what I wondered didn’t think he could will ring again on Monday see if it’s back thanks again

The plot thickens!!! ...I think.

So my usually laid back sick of the sight of me dr has his sec ring me at 6pm to tell me I need to collect my referral paperwork ASAP I’ve done that and it’s a choose and book thing for gastroenterologist the normal hospital options there but the first choice with shortest wait isn’t nhs it’s a private hospital that wouldn’t normally b available to me... only 30 day wait for an appointment so booked it.

A: not urgent if not within 2 weeks (he was referring me weds anyway he only works Monday and weds has he got my calprotectin back now)

B: am I likely to get a colonoscopy app too now? Brain on overdrive no idea what this means as it’s a month away so can’t b serious but the private hospital not posting the letter phoning me etc is setting off alarm bells

I forgot to ask what the calprotectin was and if it was back but then they wouldn’t tell me anyway they would make a gp ring me back might try tomorrow

Thanks our system is really slow and they post an appointment I’ve never had a phone call to collect my referral before but it may just be a new thing - thanks everyone for your replies I think I just needed somewhere to come and quietly panic whilst I wait to see what’s going on will try to put it to the back of my mind until the next appointment thanks for everyone’s advice x

Thanks I will do that it’s a great idea x