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Crohn's Disease
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Posted 2/25/2018 4:13 AM (GMT 0)
I posted here around 8 months ago complaining of ulcers. Had 2 endos and a colonoscopy that "cleared" me of chrons,however I have never been the same after the ulcers(they couldn't find the cause).After every drink/meal(even water). I feel the urge to go to the bathroom and I get terrible stomach cramps,when I actually sit down to go,nothing comes out(sorry for the graphics description). Does anyone have any idea what could be happening?
Posted 2/25/2018 4:39 AM (GMT 0)
Sounds like proctitis. How long ago were your scopes??
Posted 2/25/2018 10:34 AM (GMT 0)

Mak37 said...
Sounds like proctitis. How long ago were your scopes??

5 months ago give or take for the colonoscopy and latest endoscopy. The urge to go to the bathroom isn't felt in the rectum,it's felt directly in my stomach area.

Post Edited (Badstomach) : 2/25/2018 3:37:37 AM (GMT-7)

Posted 3/2/2018 2:13 PM (GMT 0)
Stomach has still been feeling funny. I am worried I could have Crohns. I get stomach cramps after every meal,no blood in bowels.

Post Edited (Badstomach) : 3/2/2018 7:18:16 AM (GMT-7)

Posted 3/2/2018 3:49 PM (GMT 0)
I think you can safely take crohns & UC off the table since your scopes & biopsys have all been clear. There is a real chance your issues go back to when you had your first endo done & what that dx. You may also want to ask your dr about trying you on some Bentyl which is an anti-spasmodic. People do not have to have IBD to have gut spasms. If nothing else, get copies of your testing & see another gi not affiliated with any you have seen to date.
Posted 3/2/2018 6:45 PM (GMT 0)
Yea it could just be ibs. There would be way more symptoms if it was Crohn’s.
Posted 3/20/2018 5:53 PM (GMT 0)
Having these issue again,just had a Bit of D while the rest of the day I have had C. Basically what happens is I will be drinking some juice/water or eating and I suddenly get an urge to go to the bathroom. When I finally sit down in the bathroom 60-70% of the time nothing comes out but flatulence.I never went in for a capsule endoscopy as I did not deem it necessary. Any possibilities I could still have Crohns?
Posted 3/20/2018 6:11 PM (GMT 0)
Since your scopes came back negative for crohns & UC you can take IBD off the table. From experience of having an ulcer when I was very, very young, once the gut flora gets messed up it can take a long time for things to balance out. I had periods of out of no where I would get hit with either diarrhea or constipation. This was long, long before crohns ever came into my life. I finally smartened up & looked at the food I was eating & what I drank. Nothing with acid in it including acidic fruit, no spicy foods or anything greasy. By the way, my dr could not tell me with why I had an ulcer, I asked. They can throw out some guesses, but its strictly a guess on their part. Once I decided to be serious about the food & drink situation it helped a lot. One of my biggest problems was not being patient & doing the right thing, lol.
Posted 3/26/2018 5:09 AM (GMT 0)

straydog said...
Since your scopes came back negative for crohns & UC you can take IBD off the table. From experience of having an ulcer when I was very, very young, once the gut flora gets messed up it can take a long time for things to balance out. I had periods of out of no where I would get hit with either diarrhea or constipation. This was long, long before crohns ever came into my life. I finally smartened up & looked at the food I was eating & what I drank. Nothing with acid in it including acidic fruit, no spicy foods or anything greasy. By the way, my dr could not tell me with why I had an ulcer, I asked. They can throw out some guesses, but its strictly a guess on their part. Once I decided to be serious about the food & drink situation it helped a lot. One of my biggest problems was not being patient & doing the right thing, lol.

I apologize for the late reply! So you said that you had an ulcer when you were younger and later developed Crohns? Could this mean that I will develop this as I get older? Appreciate the help,I skimped out on the capsule endoscopy because my physician didn't feel it was necessary and that I would be wasting my money.
Posted 3/26/2018 2:16 PM (GMT 0)
No problem with the late reply, its called life, lol. No, the ulcer had nothing to do with me developing crohns much later. I strongly urge you to get serious with a diet that has does not cause irritation to the gut such spicy foods, alcohol & caffeine & acid things. A tiny ulcer can wreak havoc on our intestines & some people can get their gut back in shape quicker than others. It took me a long time to get mine stomach straightened out. Unfortunately, anyone can gets ulcers.

I am not a dr but it sounds like you have IBS & that is something diet can take care of. Good luck & try to be patient, its tough.
Posted 3/27/2018 3:20 PM (GMT 0)
I just don't know what is wrong with me. I wake up with nausea daily and have been dealing with nausea for months now. After every meal/drink(even water) I get stomach cramps and an urge to go to the bathroom. I sometimes rotate between constipation and mild diarrhea in the same day. Have no idea what to do.
Posted 3/27/2018 3:40 PM (GMT 0)
It sounds like you would need further testing to figure out what's going on. What's your GI's plan? Could you have some other type of motility disorder or IBS? It can get frustrating trying to figure out what's going on, but when it's impacting you on a daily basis, you need to get to the bottom of it.

Have you seen multiple GIs? What did the pathology from the scopes show? Nothing? Can you get copies of the results to read through? Scopes are pretty conclusive, but it means that at the moment they found nothing. It doesn't mean they can't ever, but considering you have symptoms NOW and they found nothing, that's a strong argument indicating that there is nothing visible.

Have you had stool tests? There is also a test that can check for the presence of inflammation in the stool, calprotectin. Considering your scope results, that should come back normal as well, but it would be another item to check off the list, and might give you clues about whether it's IBS.

It is possible to miss something in a scope, but you had 2 scopes, both times while having symptoms, and found nothing in either. That is strong evidence that there's nothing to see. Have you tried imodium or an antispasmodic?
Posted 3/28/2018 1:46 AM (GMT 0)

notsosicklygirl said...
It sounds like you would need further testing to figure out what's going on. What's your GI's plan? Could you have some other type of motility disorder or IBS? It can get frustrating trying to figure out what's going on, but when it's impacting you on a daily basis, you need to get to the bottom of it.

Have you seen multiple GIs? What did the pathology from the scopes show? Nothing? Can you get copies of the results to read through? Scopes are pretty conclusive, but it means that at the moment they found nothing. It doesn't mean they can't ever, but considering you have symptoms NOW and they found nothing, that's a strong argument indicating that there is nothing visible.

Have you had stool tests? There is also a test that can check for the presence of inflammation in the stool, calprotectin. Considering your scope results, that should come back normal as well, but it would be another item to check off the list, and might give you clues about whether it's IBS.

It is possible to miss something in a scope, but you had 2 scopes, both times while having symptoms, and found nothing in either. That is strong evidence that there's nothing to see. Have you tried imodium or an antispasmodic?

Scopes were around 9 months for the first endo and then 6 months ago for another endo and a colonoscopy. So 3 scopes total and they also did a barium test 6 months ago and found no obstruction.Only been to 1 GI and no stool test.I have tried Bentyl but my general doctor removed it as he didn't know why the specialist gave it to me to begin with. All I know is my stomach is not the same as it was a year ago. I get mucus in my stool now for example. My understanding is that IBS isn't really a disease and it's more of a catchall term for people that experience digestive discomfort but the doctor has no idea what is wrong with them.
Posted 3/28/2018 9:42 PM (GMT 0)
Just had mild diarrhea. Honestly have no idea what is wrong with me. Worst part is that my digestive system is probably only going to get worse.
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