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Joint pain after remicade

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Crohn's Disease
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Posted 6/21/2018 2:19 AM (GMT 0)
Hi, can anyone tell me if the joint pain will stop after going off remicade. I been on it 4 1/2 years, 1250 mg ever 4 weeks. It just stop working in my body. I’m on stelara now, but the joint pain is killing me. It very hard to walk without a cane. Fingers, wrist, knees and hips and ankles are very sore. I was wondering if someone has stop taking remicade if the joint pains stop after a while. Please let me know.
Posted 6/21/2018 3:52 PM (GMT 0)
Remicade should be completely out of your body in about 6-months time (plus or minus depending on individual). It can be much faster if you have a lot of antibodies. It's just highly variable. If that is the cause then your joint pains should also resolve once the clearance is completed.

It really depends whether the joint pains are caused by having remicade, that is your body is actively attacking remicade within your circulatory system, or whether your joint pains are instead an extra-intestinal-manifestation of your IBD and completely unrelated to your meds. Sometimes we can get Rheumatoid arthritis as a second autoimmune condition. about 20-25% of IBD patients do develop joint pains over time, including many who are not on Remicade or any biologic. More info on that:

www.crohnscolitisfoundation.org/resources/arthritis.html
Posted 6/21/2018 5:44 PM (GMT 0)
I don’t have ibd, I have crohn. I can not see having arthritis in every joint in my body. The remicade was running out in my body. So they put me on stelara. I was just wondering how long this joint pain would stop. I have to use a cane now for walking. If I fall, there no way I would be able to get my self up. I can barely lift my leg to go up a step. Thank you giving me the information. It a help.
Posted 6/21/2018 10:16 PM (GMT 0)
Crohn’s is an IBD. It sounds a bit like the peripheral arthritis I had during my last flare. I was so sore I couldn’t walk. I got prescribed two different antibiotics at once and the pain subsided over a couple days.

I’d recommend to google peripheral arthritis and see your GE to establish if you’re flaring. Also, is your body accepting Stelara?
Posted 6/21/2018 10:56 PM (GMT 0)
Also, have you consulted with a rheumatologist to assess your joint pain? You might have another arthritic type condition associated with Crohn's. I was extremely disabled by ankylosing spondylitis that is seen in a certain percentage of those with Crohn's.
Posted 6/22/2018 3:59 AM (GMT 0)
I have, but it very joint in my body that hurting, there no way I have arthritis in every joint. I know I have it fingers.
Posted 6/28/2018 7:03 AM (GMT 0)
Check with others on here about drug induced lupus from Remicade. I developed severe joint pain after 2 years on Remicade. Blood tests have indicated Lupus. The question is if it is related to the drug or is systemic Lupus. I have stopped the infusions and have an appointment with a rheumatologist in August to investigate the problem and hopefully get a correct diagnosis. In the meantime, I am on prednisone and my joint pain is gone. It's just a waiting game at this point.
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