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Crohn's flare up?

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Crohn's Disease
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Posted 11/27/2018 9:13 PM (GMT 0)
Hi, This is my first post here and very newly diagnosed with Crohn's decease back in April 2018 with no prior history of any sort of illness. Suddenly I started having bloody stools and next thing I know was admitted to Hospital. Next 3 months were like a hell for back and forth hospital stays, one after another issues and lost almost 40 lbs in 2 months. Finally as a treatment, Dr decided to remove my large intestine completely and part of small intestine back in August 2018. I am having Ostomy bag right now with the reconstructive surgery planned for next Feb.
After surgery I started doing much better and am almost to normal health until last Sunday when I started having stomach ache again. Day before (Saturday) we had a cook out and ate some grilled meat (first time since the surgery), I also wore the compression belt (which I think I wore quite a bit tight). So Saturday was fine but next day Sunday I started having stomach ache issue and I am still having them. Now I am bit puzzled whether the pain is due to the Grilled meat (which I guess not cooked properly) or the compression belt (for wearing it too tight) or is it a Crohn's flare up?
If anybody can give some advice would be much appreciated.
Posted 11/27/2018 11:39 PM (GMT 0)
Hi and welcome to HW. I'm really surprised that you've had your large intestine removed so closely to being diagnosed. It's not uncommon to have IBD for many years for actually being formally diagnosed, but did they not opt for medications before considering surgery?

As for flaring, it's very hard to say considering both factors you mentioned may be culprits. If I wore anything compression like, I would certainly have stomach pain, and effects of foods can vary widely from one individual to the next. If your symptoms persist, then you might need some diagnostics done. You can have an MRE which is concise, yet not invasive. Hope you're feeling better soon, keep us posted.
Posted 11/28/2018 12:17 AM (GMT 0)
Hi, welcome to HW. Sorry about your traumatic introduction to this crappy disease.

Well 73monte has got me wondering about what meds you did try before having surgery. And are you on any meds now?

As for your stomach pain, it could be a slight partial obstruction due to the things you mentioned (along with possible dehydration - people without colons get dehydrated more quickly, so it's important to drink enough). Try eating a light, low residue diet for a few days - no fibre, no red meat, nothing that's hard to digest. And plenty of fluids.

Hopefully that knocks it on the head, but if it doesn't I would go and see your doctor. Worst case scenario: the Crohn's has come back, but let's hope it isn't that. It is more likely to be a mild obstruction, I think.
Posted 11/28/2018 1:57 PM (GMT 0)
Thank you all for taking time out for replying...I got the same response from my Dr (I communicate to her via msg) that it may be Muskuloskeletal pain and the intensity of the pain has gone down a bit since the last Sunday. When I was diagnosed with Crohn's, it was very aggressive...they tried Humaira first but didn't work then tried Remicade but still didn't work and was off food completely for 2 months to give a rest to Colon but at last the issue was becoming life threatening and Dr decided to do the surgery. I am being light on food for last couple of days and mainly drinking Ensure and milk atleast 2-3/day.
Thank you for your advise.
Posted 11/28/2018 7:41 PM (GMT 0)
Good luck. I hope that helps.
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